Thursday, December 10, 2009

A gold star for Tim's wife!!!!!

So I took the Dex before bed on Tuesday night and slept like a rock -- for about six hours, anyhow. Then I woke up, ready for bear! Made it through Wednesday with high energy, took an Ambien before I went to bed Wednesday night (no Tylenol PM on hand), got another six hours. By far the best I've slept since I've been on Dex in maintenance.

Taking Dex before bed is a winning strategy! Thanks Tim's Wife! :)

Still fighting off this cold...will be two weeks with it tomorrow but it is on the way out. The lingering cough is a real pain, though!

Platelets were below 100 on Tuesday -- 98 to be precise. This required the nurse to check with the doctor before administering the Velcade. She asked me if Arkansas would have a problem administering the Velcade. I told them Arkansas would have a problem NOT administering the Velcade, and would give it to me if my platelets were at EIGHT, much less 98! I checked with Arkansas to see if I should eliminate all the aspirin. I'm on one a day, still. I don't know the connection between deep vein thrombosis, plateles and aspirin, but it seems to me if the aspirin is to thin the blood, the low platelets probably mean I can discontinue it. One less pill would be a good thing!


  1. Glad it worked for ya! With Dex, it's never a perfect science but it's what worked the best most of the time for Tim. Feel better soon!
    Happy holidays to ya'll from freezin' and windy
    Jersey.(2 days of 40+ mph winds :o( I think I just saw Toto fly by)

  2. Hooray for good sleep! Glad you're continuing to make progress there, Nick! Keep shakin' off that cold, too...lots o' water always helps me with a cough. Literally, drinking water to the point where you're sick of drinking water seems to make a world of difference, at least for me.

    And to Tim's wife --- LOL re: "just saw Toto fly by"! And you're in Jersey? I guess he's not in Kansas anymore, after all! ;-)

  3. Glad you got some sleep. I had my first visit with Dr. Martin. I discussed the Arkansas treatment and he was very positive about it. He said he knew the Dr. there and he had spoke to him last week. He has referred some patients to him and that I could do the protocol here in California if I meet the profile for it. He isn't ready to recommend any treatment now, he wants the Biopsy back first. I'll have that the Monday after Christmas. Thanks for the info... I hope your cold gets better soon.

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