Well...I think it's starting to happen. I wouldn't call it painful, I wouldn't even call it distracting, but if I think about it, I can feel a little tingle from my ankles down. The dreaded peripheral neuropathy.
Now since I didn't get this while on Thalidomide, it's coming either from the Revlimid or, more likely, the Velcade. And that's a type of neuropathy that hopefully goes away with a reduction in that medicine. Of course, the little reminder from my bloodwork the other day indicates that I'm not ready to cease Velcade. But I wonder if we might want to taper it back from the 1.3mg/m2 that I'm currently enjoying to the previous 1.0mg/m2.
Something else for BB when I meet with him in a few weeks.
In other news, I remain hopeful that they'll be able to do a kyphoplasty (aka "poof up" my vertebrae) when I go to Little Rock in a few weeks. Wouldn't mind getting back the height I lost.
I've also decided that I'm going to submit myself to the full battery of tests while there. I was thinking of bagging the PET since I don't need more radiation...but since I'm not yet satisfied that I'm in the most complete remission possible, I'd like to see what's going on. So I'll do that, the horrible 2-hour full body MRI, the bone marrow, the works.
I'm looking forward to seeing a few friends, and also to eating Whole Hog BBQ!
Sunday, April 25, 2010
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