Thursday, January 1, 2009

No more golf

Well today I tried to play golf for the first time since the diagnosis. My back pain has been present but manageable so I popped a vicodin and went to play. I felt pain on about 80% of the swings, sometimes just a twinge, sometimes enough to make me drop to the ground after a swing. But I was managing. I made it through the first nine holes and thought I would continue. I wasn't scoring very well because it was impossible to swing through the ball -- I couldn't rotate around my spine as I'm supposed to. But I thought just to be able to finish the round was a good goal.

I drove on 10 and the ball was a little low but had a decent draw to it and wound up in the center of the fairway about 170 yards from the pin. I took out my club and swung and I felt like somebody had stabbed me in the back with an inch-thick steel rod. I heard a crack (like a knuckle cracking) and I fell to the ground in pain. I was really scared...I thought for a moment that I'd literally broken my back or at a minimum shattered a vertebrae there. It felt very warm at the location where it was tweaked. The pain was very intense for about five seconds and I thought for sure I was going to have to go to the hospital.

It subsided just enough for me to get to my feet, so I knew my back wasn't broken, but golf was out of the question. I moved slowly back to the cart and called Jill to let her know what had happened. My back is tender now but doesn't hurt. Nonetheless, no more golf until I'm better.

I'm going to see Forman tomorrow morning and will ask him about getting on biophosphonates for the back. They have some side effects but I have to arrest the damage being done.

Separately, I received an email from a a very nice woman named Lois who is 56 and who recently completed Dr. BB's therapy. She is in complete remission and feels very good about the protocol and wonders why anybody in my situation would think twice about it. I will be corresponding with her and another couple of people that have gone through it in an effort to educate myself.

One thing that is becoming a bigger concern to me is the lack of long-term disability insurance. I must find a way to get it as I'm going to be out of the office for more than six months -- probably as long as a year.

Anyhow, that's all the news for today. More to post tomorrow after I see Dr. SF, where my topics of questions will include (a) biophosphonates, (b) how he feels about Dr.BB's protocol, (c) whether he could give me any of the maintenance therapy even if he doesn't want to do the tandem transplants, etc. (d) whether any of the information presented at the recent hematology conference changed his perspective on treatment, (e) what the current state of my disease is given the blood work that we did there a month ago -- and they will do more tomorrow, (f) what kind of HLA typing my brothers and I need to do, and (g) what his colleagues said when he had them review my case.

Happy New Year...and a change in luck

I took Jill out to dinner last night at Spago to celebrate New Year's Eve. Actually, more to say a giant "screw you 2008" but hey, the food was the same.

In 2008, Parker was diagnosed with cone dystrophy, a horrible eye condition that is going to leave her legally blind WITH glasses and with no existing prospects for correction (people, I urge you, support any and all stem cell research). My wife spent a week in the hospital with meningitis. And of course I was diagnosed with incurable cancer (again, support stem cell research). 2008, in short, sucked. Or to use slightly more mellifluous verbiage, as the Queen of England once said in reference to the year where Diana died, 2008 is our "Anno Horribilis."

Luck, it seems, may have started turning already. As you may know, I'm an avid wine collector, with around 4,000 bottles in the cellar. Some of these are relatively inexpensive, many are reasonable, and a few are quite pricey. While I am resolved to beat this disease, I am somewhat mindful that the more expensive wines should be drunk perhaps a bit sooner than I was planning, in part because even if I kick Myeloma one of the things that can happen as a result of therapy is that taste buds can be damaged or destroyed. I might never enjoy wine again.

So I brought one of the gems last night: a 1990 Beasejour-Duffau, which the world's foremost wine critic Robert Parker assigned 100 points and about which he wrote:

I have had the 1990 Beausejour-Duffau a half-dozen times since the in-the-bottle report in Issue #85 (2-28-93). I believe this wine may, in 15-20 years, be considered to be one of the greatest wines made this century. It is in a league with such legends as the 1961 Latour a Pomerol. Beausejour-Duffau's 1990 has always been the most concentrated wine of the 1990 vintage. The color remains an opaque murky purple. The nose offers up fabulously intense aromas of black fruits (plums, cherries, and currants), along with smoke, a roasted herb/nut component, and a compelling minerality. The wine is fabulously concentrated, with outstanding purity, and a nearly unprecedented combination of richness, complexity, and overall balance and harmony. What makes this effort so intriguing is that as good as Beausejour-Duffau can be, I know of no vintage of this estate's wine that has come remotely close to this level of quality. In several blind tastings, I have mistaken this wine for either the 1989 or 1990 Petrus! However, the 1990 Beausejour-Duffau is even more concentrated than those two prodigious efforts. It should be at its best between 2000-2030.

So anyhow, we were enjoying this gem of a wine, having a wonderful dinner, and observing the 30-odd people at three adjoining tables who looked like they were mafiosos. The guy that I assumed was the capo was drinking profusely and at one point started dancing around (I'm thinking at this point it was probably the Greek mob rather than the Cosa Nostra). Anyhow the guy danced right into our table, knocking a bunch of water, our food, etc. on my lap. Thankfully we lost no wine but of course I made a minor fuss out of things and suggested that we grab the remainder of the wine and head home for the evening because I would be upset and unable to have a good time and afraid that if I glared at this guy or his friends we'd be "whacked." :)

Now a few years ago, at an equally nice establishment, the wife had a tureen of lobster bisque dumped on her and the establishment did virtually nothing. After being told that they should be ashamed of themselves, the maitre'd there reluctantly offered to pay for dry cleaning. Pretty pathetic. At any rate, I wasn't assuming we'd get a whole lot more from Spago.

But I was wrong. They cleaned everything up, apologized profusely, brought a complementary split of Krug N.V. champagne (I had brought one for us to the restaurant but that was gone) and advised that the don who knocked the table over wanted to do something nice and had a very good cellar. I said that I'd brought a wine that, were it on their list, would be embarrassingly expensive (and since people seemed to think some of it had spilled -- and perhaps it did -- I did nothing to disabuse them of this notion). The sommelier agreed that my bottle was very nice, but again said the don had a very nice cellar.

At any rate, they brought over a bottle compliments of the don. It was a 1982 Mouton Rothschild, which is about 30% more expensive than even the wine I brought! We took it home and put it in the cellar. Parker writes that this wine, too, is 100 points.

Opaque purple-colored showing absolutely no signs of lightening, Mouton's 1982 is a backward wine. Still tasting like a 4-5 year old Bordeaux, it will evolve for another half century.

At the Philadelphia tasting, it was impossibly impenetrable and closed, although phenomenally dense and muscular. However, on two other recent occasions, I decanted the wine in the morning and consumed it that evening and again the following evening. It is immune to oxidation! Moreover, it has a level of concentration that represents the essence of the Mouton terroir as well as the high percentage of Cabernet Sauvignon it contains.

Cassis, cedar, spice box, minerals, and vanillin are all present, but this opaque black/purple Pauillac has yet to reveal secondary nuances given its youthfulness. It exhibits huge tannin, unreal levels of glycerin and concentration, and spectacular sweetness and opulence. Nevertheless, it demands another decade of cellaring, and should age effortlessly for another seven or eight decades.

I have always felt the 1982 Mouton was perfect, yet this immortal effort might be capable of lasting for 100 years! Readers who want to drink it are advised to decant it for at least 12-24 hours prior to consumption. I suggest double decanting, i.e., pouring it into a clean decanter, washing out the bottle, and then repouring it back into the bottle, inserting the cork, leaving the air space to serve as breathing space until the wine is consumed 12-24 hours later. The improvement is striking. The fact that it resists oxidation is a testament to just how youthful it remains, and how long it will last. Anticipated maturity: 2010-2075.

100 years, of which 65 are left and it's not yet begun to be in its prime. There's a message there. In vino veritas.

I bought the man a nice glass of scotch, gave him the last glass of our 1990 Beausejour, and told him he can knock into my table anytime.

Luck, it seems, is changing already. High time for it. And I will be healthy this year.

Happy New Year to you all.