Tuesday, June 9, 2009

Another FNA? Effin' A!!

Howdy folks.

So, first of all, thanks especially to the people that urged me to buck up in response to my last post, which had a bit of woe-is-me in it. I appreciate you reminding me to stay positive and focused.

BB came in. I asked him if I was on track for remission, and he said he was "puzzled" by the "persistence of your M-protein." He also noted that "some people in low risk disease never achieve remission." I had to remind myself, I still have the tail of this transplant, plus consolidation therapy (dose-reduced VTD-PACE), plus three years of velcade, revlimid and dex. I'll get there. I'd just rather get there sooner than later. The sooner I get there, the more of this other therapy is used to keep making my body inhospitable for Myeloma, versus trying to get rid of what's already there.

He thought all my labs looked good, although now he's no longer joking about the liver numbers. They're still only mildly elevated but he wants to run liver panels twice a week to check on them. They did NOT come down last time, so I don't anticipate they will be to quick to go down this time, although I'm going to have a little more time off than planned. BB doesn't want me to start consolidation until the week of July 13, in order to give my marrow time to recover. That's fine with me...more time for the M-spike to fall. I'll be on bridging therapy (50% dose-reduced thal and dex) in the meanwhile, so that, also, should cause it to decrease.

When I return, he has ordered another Fine Needle Aspiration of the lesion in my right hip, which is the largest at 3.2cm as of 5/20 (my last PET). It was pushing 8cm at the start of treatment, so it is smaller. But he wants to know what is going on it there. Hopefully it will be gone by the next PET and he won't need the FNA...because readers of the blog will perhaps recall my last experience with the snake-handling religious maniac that does those.

I advised the nurses how it was going to go down this time...that I was going to have an anesthesiologist in the room administering the proper drugs, not a bunch of buffoons standing around saying "yer not gonna remember any of this hahaha!!" while I'm telling them I'm lucid and going to remember every second, which of course I do to this day.

Anyhow.

After five days of nurses looking at that Dex rash on my neck and saying "it'll go away" the nurse in BB's clinic instantly said "gawd what the hell is that on your neck?" and immediately prescribed some creme. It would have been nice to have had this a week ago. Conveniently, the creme came in a drum the size of a canteloupe so I'm not going to be able to bring it on the plane with me.

While back in LA, I'll go to the lab twice a week to have blood drawn, and they gave me the little kits this time so that two extra tubes will be drawn, clotted, spun in a centrifuge and given back to me to overnight to Arkansas for additional tests. They also gave me a pee jug they want me to mail in.

With this in mind, the quote of the day goes to Mike, one of the nurses in the clinic. "If you're like most people, you won't want to carry a jug full of urine on a plane."

Yes, Mike, I am like most people.

I forgot to mention, yesterday I went to lunch at Chick Fil-A, which I had remembered fondly from my youth. They are a chain perhaps most notable for the owner's decision, for reasons of his faith, not to be open on Sundays. I should say that in California, this is notable. In Arkansas, it is hardly unique. In fact on Sunday if you are driving around looking for lunch, your only options are Shlomo's Deli and Habib's Falafel. [crickets] Is this thing on??? Anyhow...sorry to report that Chick Fil-A was not as good as I remembered.

Okay folks. Be well. My next entry will be from home, probably after I get updated labs.

7 comments:

  1. I hear the latkes at Shlomo's are to plotz for.

    Call me when yu get back to LA. We'll nosh...

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  2. You must be talking about that Chik Fil-A in the SR mall.. :)

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  3. Yes, Chris, that's precisely the one I was thinking of! :)

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  4. Well, the folks at Homeland Security and TSA are pretty fussy about allowing more than 3 ounces of anything - ANYTHING - on the plane... bet a jug would set them off! Happy trails, Nick...

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  5. I'd love to see them checking out a jug of urine though. Imagine them detonating it in the middle of the runway

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  6. Chick fil A... livin' the high life I see!

    Enjoy your time with the family.

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