Hi folks.
I've not updated this page in what seems like ages, mostly because there hasn't been that much that is interesting. However, a couple of you have been kind enough to reach out -- which I very much appreciate -- so let me say that I'm doing fine and here's a very quick update.
* I'm now seeing BB at Mt. Sinai in NY, where there are hitches relative to the extremely well-oiled machine at UAMS but which is improving. There are very good people there.
* I had a checkup there about three months ago -- my second in NY -- and everything is clean as a whistle. They do not do MRD testing; they do a kind of "deep sequencing" analysis which shows no Myeloma but a gene that is switched on that could, if all the dominos fall in a certain direction, lead to a precursor to leukemia. This could be a result of all the nasty treatment I had, or it could be absolutely nothing as by the time we age, 20% of the population has this same propensity. For the moment, there's nothing we can act on even if it IS something bad, so we soldier on.
* There was some nastiness afoot this past year when an organization similar to NICE in the UK tried to prescribe a single path of cost-effective treatment for Myeloma. This effort was backed by Mayo, unfortunately, under the heading of making treatment available for more people (paging Dr. Sanders, Dr. Bernie Sanders) but thankfully the organization backed down in the face of opposition from patient rights groups and patients themselves. For the moment, they agreed there can be no single path for therapy.
* I had more tissue cut out of my right index finger, which turned out to be negative, over scares of a return of the squamous cell carcinoma that was a side effect of the VRD treatment I was on. As I said, after digging through my poor finger's nail bed not once but TWICE, it was determined that there was no cancer there. So now I'm without a nail, but once again it's a tiny issue relative to everything else that could happen.
* I return to NY next summer, date TBD, for regular follow-up, and continue to be monitored locally on a more regular basis.
* I remain active in helping others with the disease and am pleased to be contacted by people that find this blog. Please continue to reach out to me if you need help.
That's pretty much it -- onward with life! Happy holidays to you and yours!
Warm regards,
Nick
Subscribe to:
Post Comments (Atom)
Good to hear you are doing so well, Nick. My SIL, who was diagnosed in 2007 is also doing well, after being off all meds most of 2016 except some medical MJ. His numbers have held steady (low) and his energy is returning. A good thing, too, since the family bought a small farm and he mows almost daily during the growing season. But sadly the sister who provided the allo for him, died in December with a cancer she thought was in remission. But we soldier on, feeling grateful for the good things that come our way. Intending you continue to enjoy good health and good numbers in this year and those to come!!
ReplyDeleteThanks for the update, Nick - so glad to hear you're continuing to do well! That gives so much hope to all of us in the MM community! Don't wait so long between updates next time!
ReplyDeleteHi Nick...I am glad you are well and hope you and family had a nice Christmas. I have missed seeing your blog and got out of the habit of checking, but happened to look today.
ReplyDeleteI have wanted to find an opportunity to tell you how important your blog has been to my family. My younger brother was diagnosed with MM last March and I and another brother started researching alternatives to help he and wife decide on a course of action. Their bias was to act quickly, but it quickly became clear to me that MM was complicated enough to require a thoughtful evaluation of the many treatment alternatives. The complexity of MM and treatment options/risks/benefits was initially very overwhelming and left me struggling to offer advice to my brother.
Then I found your blog, and it was cogent and clarifying. Since my brother's MM was the most important issue going on in our life, I quickly reached out to you with questions to seek clarification and get your opinion on alternatives. You were exceptionally generous with your time and quick responses...and it was only later that I started to get some idea of the bazillion things you had going on in your life (in addition to fighting MM).
Paul is being treated by BB at Sinai and is receiving his final round of VDT-PACE consolidation therapy today. He achieved CR after the 1st of two stem cell transplants. His spirits and his health are good...now only 9 more years to call it a cure (and live long enough to die of something else)!
I do not have the words to express my thanks and gratitude to you for sharing your story and helping my family with our fight. You have the gift of an incisive mind that helped us cut through many confusing issues...and told in a compelling way (I could not stop reading...I had to find out what happened next!) and with a great sense of humor.
I am deeply thankful for you and wish you continued great health and success.
Kind regards, Rob H.
Nice article.. thanks for sharing.
ReplyDeleteVan Man London provides professional removal experts with removals van London.
ALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM MYELOMA
ReplyDeleteIs my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from myeloma. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her myeloma and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from myeloma. and now she very mush okay without any side effects whatsoever, If you have myeloma , you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.
ALL THANKS TO DR WILLIAMS
ReplyDeleteI was diagnosed of myeloma in 2011, I have tried all possible means to get cure but all my effort proved abortive, until a friend of mine introduced me to a herbal doctor , who prepare herbal medicine to cure different kind of diseases including myeloma , when i contacted this herbal doctor via his email, he sent me the myeloma herbal medicine via courier service, when i received the herbal medicine he gave me step by step instructions on how to apply it, when i applied it as instructed by Dr Williams i was totally cured from this disease within 1 months of usage. any body with similar problem can Contact this great herbal doctor via his email drwilliams098675@gmail.com for advice and for his product,and thanks to you admin for such an informative blog.
Thank you for the wonderful suggestions, this is really a very good blog and these tips are very useful for cancer patients
ReplyDeletepomalid 1mg,pomalid 1mg capsules
pomalid 2mg,pomalid 2mg capsules
pomalid 4mg,pomalid 4mg capsules
I'm 55-year-old from Korean, I was diagnosed with second-stage liver cancer following a scheduled examination to monitor liver cirrhosis. I had lost a lot of weight. A CT scan revealed three tumors; one in the center of my liver in damaged tissue and two in healthy portions of my liver. No chemotherapy or radiotherapy treatment was prescribed due to my age, the number of liver tumors. One month following my diagnosis I began taking 12 (350 point) Salvestrol supplements per day, commensurate with my body weight. This comprised six Salvestrol Shield (350 point) capsules and six Salvestrol Gold (350 point) capsules, spread through the day by taking two of each capsule after each main meal. This level of Salvestrol supplementation (4,000 points per day) was maintained for four months. In addition, I began a program of breathing exercises, chi exercises, meditation, stretching and stress avoidance. Due to the variety of conditions that I suffered from, I received ongoing medical examinations. Eleven months after commencing Salvestrol supplementation But all invalid so I keep searching for a herbal cure online that how I came across a testimony appreciating Dr Itua on how he cured her HIV/Herpes, I contacted him through email he listed above, Dr Itua sent me his herbal medicine for cancer to drink for two weeks to cure I paid him for the delivering then I received my herbal medicine and drank it for two weeks and I was cured until now I'm all clear of cancer, I will advise you to contact Dr Itua Herbal Center On Email...drituaherbalcenter@gmail.com. WhatsApps Number...+2348149277967. If you are suffering from Diseases listed below, Cancer, HIV/Aids, Herpes Virus,Bladder cancer,Brain cancer,Colon-Rectal Cancer,Breast Cancer,Prostate Cancer,
ReplyDelete?Esophageal cancer,?Gallbladder cancer,Gestational trophoblastic disease,Head and neck cancer,?Hodgkin lymphoma
?Intestinal cancer,Kidney cancer,Leukemia,Liver cancer,Lung cancer,Melanoma,Mesothelioma,?Multiple myeloma,?Neuroendocrine tumors,Non-Hodgkin lymphoma,?Oral cancer,Ovarian cancer,?Sinus cancer,Skin cancer,Soft tissue sarcoma,Spinal cancer,Stomach cancer,Testicular cancer,Throat cancer,Thyroid Cancer,?Uterine cancer,Vaginal cancer,?Vulvar cancer,Hepatitis, Chronic Illness. Lupus,Fibromyalgia.
--------
ReplyDeleteشركة تنظيف بالامارات
شركة تنظيف دبي
شركة تنظيف كنب بدبي بالبخار
شركة تنظيف سجاد بدبي
شركة تنظيف في ابوظبي
شركة تنظيف منازل فى العين
شركة تنظيف كنب في ابوظبي
شركة تنظيف كنب العين
Herpes is a sexually transmitted virus that primarily infects the mouth and the genitals. It is transmitted by bodily fluids – penetration isn’t required for transmission, oral-oral or oral-genital contact will suffice.I WAS ONCE HERPES SIMPLEX VIRUS patient, I have HSV-I genitally and I'm one of the rare cases where I was infected by sexual contact. The person who infected me was unaware that he had it, and he tested negative on a blood test (he probably got it from his mother at birth and never had an outbreak in his life).I'm sure I have HSV-I (they did a culture of the fluid from the sores i had during my initial outbreak). So it is possible to contract HSV-I by asymptomatic asexual contact, so please people talk about this and prevent anyone else from getting it, I'm kind of going through something. Four years ago my love and I both had an OB and when I got the blood work done it came back negative. We were happy in the relationship so I learned to accept it and never really bothered to get tested again. Now, that we broke up I decided to get tested again. I came back negative for both HSV-1 and HSV-2 (got the news!) and have not had an OB since the initial one four years ago. My X on the other hand has had a few small outbreaks and never came back positive for HSV-1.Only the help of Dr Afrid where able to help me out with is Root and Herbs, if you are having any type of this disease or infection like HIV,CANCER OR ANY disease kindly email doctor Afrid for cure:( drafridherbalhome@gmail.com ) or Whatsapp him on +2349057260738.
ReplyDelete
ReplyDeleteشركة تنظيف مكيفات سبليت بالرياض شركة ركن كلين
---------------------
نحن شركة متخصصة في تنفيذ اعمال تنظيف وصيانة واصلاح جميع انواع المكيفات التي تستخدم داخل المنازل والفلل والشركات والمصانع وكافة الاماكن حيث تقدم [url=https://www.nileriyadh.com/%D8%B4%D8%B1%D9%83%D8%A9-%D8%AA%D9%86%D8%B8%D9%8A%D9%81-%D9%85%D9%83%D9%8A%D9%81%D8%A7%D8%AA-%D8%A8%D8%A7%D9%84%D8%B1%D9%8A%D8%A7%D8%B6/]شركة تنظيف مكيفات بالرياض[/url] خدمات تنظيف مكيفات شباك ومكيفات صحراوية ومكيفات شباك ومكيفات سبيلت والتكيفات المركزية باستخدام الوسائل الحديثة ويتم تنظيف الوحدات الداخلية للمكيفات وازالة الاتربة والغبار والاوساخ وازالة الروائح الكريهة العالقة بالمكيف كما يقوم فني مكيفات بالرياض بصيانة واصلاح جودة التبريد وضبط صوت التكيف للمستوي المثالي وغيرها من أعمال الصيانة فقط عزيزي العميل قم بالتواصل معنا وقم بعرض مشكلتك وسوف تقوم افضل شركة تنظيف مكيفات بالرياض بسرعة التواصل معك والوصول إليك حيث ما كنت لعمل اللازم علي الفور فقط قم بالاتصال علي ارقامنا نصلك اين ما كنت علي الفور.
I came across a testimony shared by someone on how she was cured from Herpes Disease. I quickly contacted him to get the cure. I bought the herbal medicine from the herbal doctor [Robinson Buckler]. I took the herbal medicine for 2 weeks as instructed and i went for a medical checkup and to my greatest surprise i was cured from Herpes virus. My heart is so filled with joy. If you are suffering from Herpes or any other disease you can contact this herbal doctor today on this Email address_________________robinsonbuckler@[[yahoo.com]].....Thank you Doctor
ReplyDelete[…] It’s a crazy miracle product.. […]
( best herbal remedy… )
Thank you