Tuesday, November 11, 2014

I'm good on paper, at least!

Just got the call back from my doctor.

No MM under SPEP, IFE is normal, light chains normal, IgG and IgA are in normal range, IgM still recovering from transplant (as expected), B2M normal, liver numbers on the cusp of high but that's where they always are (if I need a new liver in 30 years, it'll be a high class problem).

So the question remains: why is this flank pain, which I noticed during my workout this morning, still there?

I will be getting imaging in Arkansas in January, but it the pain doesn't abate in two weeks, I may jump the gun and get some done here.

Meanwhile, keep calm and carry on, eh?  :)


  1. Overall, great news. Just about everyone I know with MM, including me, gets suspicious pains at one time or another which causes us to fear relapse. In my case, it hasn't been. Let's hope the flank pain is unrelated and easily solved.

  2. I had my gallbladder scanned, kidneys, you name it. No one could explain the pain in my upper right abdominal area wrapping around my side to my back. Well, I believe what we have is chronic abdominal wall pain caused by the nerve damage in our spine http://www.uptodate.com/contents/chronic-abdominal-wall-pain

  3. Just google chronic abdominal wall pain and there are plenty of good articles. I have degenerative disk disease in the C and T spine. Also had a 5cm plasmacytoma flattening my spinal cord at the T-1/2. Not to mention many many lytic lesions on the spine. The pain only developed a couple of years ago. As I said, I and all kinds of testing and imaging...nothing. It could be your spine/disks are bulging or inflamed causing the nerves to radiate the pain. Mine is at its worse when sitting in front of a computer screen or in a bad posture sitting position where my neck is bent. It sets the pain in motion. It comes and lasts a few weeks then goes, then returns. I'm positive I figured it out. Chronic Abdominal Wall Pain...check it out ;-)

  4. Nick, having trouble telling you how pleased I am that you are doing well. Hope this time it works.

  5. So glad to hear you are doing well... my SIL is too, not in CR, but has been stable for almost 8 months now going on two years since the allo. He's got a 'flare-up' of some kind and fortunately his wife is aggressive about not letting it go and gets him into specialists right away to get answers... but like so many with MM that fear is always there "is it rearing its ugly head again?" But for now, all is good.