Nick's Myeloma Blog

I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!

Friday, September 21, 2012

PHEW!!!!!! Good news from Arkansas!

First of all, thank you all SO much for your prayers, emails, voicemails, texts, comments, intentions, positive vibes and well wishes. They...

Wednesday, September 19, 2012

The second opinion derby, redux

Howdy folks. After getting knocked about a bit, I think I have found my sea-legs a bit and am going about the process of speaking to peopl...

Monday, September 17, 2012

A more thoughtful recap of my current status

Hello friends. I've had a couple of days to think through what the current situation is and so I'm going to try to recap it here. ...

Wednesday, September 12, 2012

It's been a sh*t day...so I close with a bit of inspiration

Pardon my borrowing the greatest man of the 20th century, but it's the right expression for now. This is for you, Jill, whom I love wi...

Disconcerting update from Little Rock...

With my next post, I had hoped to simply catch up on some interesting things that I am late to report -- like the CureTalk conversation, e...

Thursday, August 16, 2012

Your humble narrator appears on CureTalk soon...

Welly welly well, my brothers... Obscure Clockwork Orange references aside, I am participating in a panel that may be of some interest to ...

Wednesday, August 1, 2012

Much improved, thanks for asking!

Hello folks. Thanks to those who have asked for an update! * My fingers continue to improve but aren't there just yet. My surgicall...

Thursday, July 19, 2012

Back to work

I posted bail yesterday and got out of the hospital. We still don't know what is going on. The spots on my fingers seem to be impro...

Tuesday, July 17, 2012

Mini update

Today began with somebody wanting to do a punch biopsy on one of the lesions on the back of my right hand, which they have already scraped f...

Monday, July 16, 2012

"Fingles"...or "The Myeloma Dream Team"...or "Another Triumph for Self-Diagnosis"...or simply "OUCH"

Well, where to begin. I guess the place to begin with is...it wasn't peripheral neuropathy. I suppose I should feel good about that......

Saturday, July 14, 2012

New Ropathy

Well, this stinks. Three years into therapy I'd never had more than a tiny tingling in my toes. This would go away nearly as soon as ...

Friday, July 13, 2012

My "Tough love" interview with CureTalk

Hi folks. Hope you are all well. Not so much an update, but I did want to let you know that I was recently interviewed by a website calle...

Wednesday, June 27, 2012

The finger-spine-shoulder-reimmunization-maintenance update!

Phew, that's a mouthful. But I figured one day I (or others, perhaps) might want to search for some of these key words so I threw them ...

Friday, June 15, 2012

Happy Birthday to me...

I don't have too much to report, but I turn 44 today, which is now officially over the lower limit of the 3-5 year life that I was told ...

Tuesday, May 29, 2012

Quick update and an interesting article on curability...

Update one: the no-Ativan lifestyle does return some mental acuity and energy, even if I am still largely exhausted from time to time due t...

Sunday, May 13, 2012

Plant vs. Zombie...

Another pop culture reference...Plants vs. Zombies is an extremely popular game for mobile phones. As I tell the wife, the best jokes are ...

Tuesday, May 8, 2012

A bit of finger...

Pop culture reference: that's the name of a brief little instrumental interlude on Black Sabbath's 1970 eponymous debut CD. Good o...

Wednesday, April 18, 2012

Well, DAMMIT...finger problems

No sooner did I post my previous update than I got a call from the dermatology clinic at UAMS. Very likely that my finger biopsy revealed a...

Arkansas update...all (pretty) good...

Hello folks. Spent last week in lovely Little Rock. Several goals, with mixed success: 1. Eat a pizza at Dam Goode Pies. Check. 2...

Friday, March 9, 2012

Gadzooks it's been a long time! Sorry folks! :)

Thought I better drop by and let you know I'm still alive and kicking! The demands of my job have risen of late and have kept me very,...

Thursday, January 5, 2012

Eye on the Prize

Well folks I'm so far behind here and I'm very sorry about that! I do have stuff to post as I said before, just been busy. The h...

Wednesday, December 7, 2011

In memoriam...Bruce Bertsche

I have a few updates to post in the next few days: gastroenteritis / gastritis, an interesting debate on curability versus control, some stu...

Thursday, November 17, 2011

Overdue for a catchup...notes on three years post diagnosis, etc.

Howdy folks. Been busy as a beaver in my job, so I've been scarce around here. Sorry about that! I've endured a couple of misad...

Monday, October 10, 2011

Quick observation on Velcade...

So I was out of the country last week and for the first time in two years of maintenance, missed a Velcade infusion. I'm told I'm a...

Tuesday, September 27, 2011

Belated reporting of last checkup

Where has the time gone? Children are back in school, my band (a time-consuming project) has been rehearsing for a brief European tour of s...

Wednesday, September 21, 2011

A very cool dialogue with an online MM presence treated very differently than I...

Hello folks. I will shortly be giving you an update on my visit to Arkansas last week (which was good, still in complete remission, a coupl...

Thursday, September 1, 2011

Dosing to keep the ol' GI tract working...

After last week's disaster, I figured I must be doing it wrong. I looked at my bottle of Reglan (so funny that I thought it was Ragali...

Sunday, August 28, 2011

Thoughts on two years of maintenance...full list of side effects, meds, etc.

Hello friends. Sorry to take so long between posts but there's been precious little to update you on and I don't want to just blab...

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Nick: Los Angeles, CA

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