Nick's Myeloma Blog

I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!

Sunday, May 13, 2012

Plant vs. Zombie...

Another pop culture reference...Plants vs. Zombies is an extremely popular game for mobile phones. As I tell the wife, the best jokes are ...

Tuesday, May 8, 2012

A bit of finger...

Pop culture reference: that's the name of a brief little instrumental interlude on Black Sabbath's 1970 eponymous debut CD. Good o...

Wednesday, April 18, 2012

Well, DAMMIT...finger problems

No sooner did I post my previous update than I got a call from the dermatology clinic at UAMS. Very likely that my finger biopsy revealed a...

Arkansas update...all (pretty) good...

Hello folks. Spent last week in lovely Little Rock. Several goals, with mixed success: 1. Eat a pizza at Dam Goode Pies. Check. 2...

Friday, March 9, 2012

Gadzooks it's been a long time! Sorry folks! :)

Thought I better drop by and let you know I'm still alive and kicking! The demands of my job have risen of late and have kept me very,...

Thursday, January 5, 2012

Eye on the Prize

Well folks I'm so far behind here and I'm very sorry about that! I do have stuff to post as I said before, just been busy. The h...

Wednesday, December 7, 2011

In memoriam...Bruce Bertsche

I have a few updates to post in the next few days: gastroenteritis / gastritis, an interesting debate on curability versus control, some stu...

Thursday, November 17, 2011

Overdue for a catchup...notes on three years post diagnosis, etc.

Howdy folks. Been busy as a beaver in my job, so I've been scarce around here. Sorry about that! I've endured a couple of misad...

Monday, October 10, 2011

Quick observation on Velcade...

So I was out of the country last week and for the first time in two years of maintenance, missed a Velcade infusion. I'm told I'm a...

Tuesday, September 27, 2011

Belated reporting of last checkup

Where has the time gone? Children are back in school, my band (a time-consuming project) has been rehearsing for a brief European tour of s...

Wednesday, September 21, 2011

A very cool dialogue with an online MM presence treated very differently than I...

Hello folks. I will shortly be giving you an update on my visit to Arkansas last week (which was good, still in complete remission, a coupl...

Thursday, September 1, 2011

Dosing to keep the ol' GI tract working...

After last week's disaster, I figured I must be doing it wrong. I looked at my bottle of Reglan (so funny that I thought it was Ragali...

Sunday, August 28, 2011

Thoughts on two years of maintenance...full list of side effects, meds, etc.

Hello friends. Sorry to take so long between posts but there's been precious little to update you on and I don't want to just blab...

Wednesday, July 6, 2011

Embrace your inner biting monkey

I've met many very interesting people in my line of work, but few are more interesting than my friend Dr. EH. Dr. EH (his Ph.D is i...

Thursday, June 23, 2011

Two Musketeers and a Guy with a Wet Hacking Cough

Years ago, that was an entry on a David Letterman Top 10 list for "least favorite candy bars." I remember the #1 entry was Johnn...

Wednesday, June 15, 2011

Vanity, a caution against supplements and a thankful false alarm

Hello peeps. It's my birthday today...43. Since I was diagnosed at 40 and had no idea if I would reach 43, I'm a pretty happy cam...

Monday, May 23, 2011

The actual meeting with BB...

So as happens on these visits, my last scheduled appointment was with BB. I got to the clinic, met first with a research nurse who made sur...

A very good checkup! (part 1 of 2)

Apologies for the delays in posting this, dear readers, but I've been frightfully busy with my day job. Some highlights from the week ...

Monday, May 16, 2011

Dateline: Arkansas

Hello folks. Sitting in a hospital bed waiting for my bone marrow team to show up. Figured this was as good a time as any for an update. ...

Wednesday, April 27, 2011

A quick thought on caregivers...

Without caregivers, it would be unthinkably challenging to those of us battling this disease. Give your caregiver a hug today. There you...

Wednesday, April 20, 2011

A bit more on killer cells at UAMS...

For those interested, the trial in which BrB will be enrolled is described right here. If this works for high risk patients, it will likel...

Another example of why I love my doctor

A fellow traveller -- well, actually, we're going to call this guy a warrior...BB are his initials, and he's not related to my marve...

Monday, April 11, 2011

Bruising like a grape

Just a quick update about one of the side-effects of Revlimid. I banged my hip against my desk a couple of weeks ago and a GNARLY bruise re...

Saturday, March 26, 2011

Sad news about Geraldine Ferraro...

A sober reminder of how horrible this disease is. She was quite a fighter -- living with this for 12 years. She outlasted the odds availab...

Tuesday, March 15, 2011

Thought I'd let you know I'm not sick! :)

Sorry to have been so busy!!! I have some interesting things to post...I have on average two people a week email me as newly diagnosed pat...

Thursday, January 27, 2011

Reflecting on lost friends, those still here, and those I continue to meet...

It's roughly two years to the day since I began treatment. I took my medicine this week, including Zometa (a pricey little thing at $3,...

Friday, January 14, 2011

Normal marrow and other thoughts, including BBs opinion on the Revlimid scare

First off, everything looks good. Marrow has 50 percent cellularity, 5 plasma cells, 2 percent core plasma cells and is negative for Myelom...

Thursday, January 13, 2011

Two things to be nervous about...

I am typing this from a stretcher about to be rolled in for the bone marrow. You gotta love how good Arkansas is about getting patients th...

Arkansas update, or BOOP BLEEP BZZZZ BLAM BLAM BLAM

Those onomatopoeias there reflect but a few seconds worth of the aural cacaphony of an MRI. I had about two hours worth of that plus a ho...

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Nick: Los Angeles, CA

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