Nick's Myeloma Blog

I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!

Wednesday, June 15, 2011

Vanity, a caution against supplements and a thankful false alarm

Hello peeps. It's my birthday today...43. Since I was diagnosed at 40 and had no idea if I would reach 43, I'm a pretty happy cam...

Monday, May 23, 2011

The actual meeting with BB...

So as happens on these visits, my last scheduled appointment was with BB. I got to the clinic, met first with a research nurse who made sur...

A very good checkup! (part 1 of 2)

Apologies for the delays in posting this, dear readers, but I've been frightfully busy with my day job. Some highlights from the week ...

Monday, May 16, 2011

Dateline: Arkansas

Hello folks. Sitting in a hospital bed waiting for my bone marrow team to show up. Figured this was as good a time as any for an update. ...

Wednesday, April 27, 2011

A quick thought on caregivers...

Without caregivers, it would be unthinkably challenging to those of us battling this disease. Give your caregiver a hug today. There you...

Wednesday, April 20, 2011

A bit more on killer cells at UAMS...

For those interested, the trial in which BrB will be enrolled is described right here. If this works for high risk patients, it will likel...

Another example of why I love my doctor

A fellow traveller -- well, actually, we're going to call this guy a warrior...BB are his initials, and he's not related to my marve...

Monday, April 11, 2011

Bruising like a grape

Just a quick update about one of the side-effects of Revlimid. I banged my hip against my desk a couple of weeks ago and a GNARLY bruise re...

Saturday, March 26, 2011

Sad news about Geraldine Ferraro...

A sober reminder of how horrible this disease is. She was quite a fighter -- living with this for 12 years. She outlasted the odds availab...

Tuesday, March 15, 2011

Thought I'd let you know I'm not sick! :)

Sorry to have been so busy!!! I have some interesting things to post...I have on average two people a week email me as newly diagnosed pat...

Thursday, January 27, 2011

Reflecting on lost friends, those still here, and those I continue to meet...

It's roughly two years to the day since I began treatment. I took my medicine this week, including Zometa (a pricey little thing at $3,...

Friday, January 14, 2011

Normal marrow and other thoughts, including BBs opinion on the Revlimid scare

First off, everything looks good. Marrow has 50 percent cellularity, 5 plasma cells, 2 percent core plasma cells and is negative for Myelom...

Thursday, January 13, 2011

Two things to be nervous about...

I am typing this from a stretcher about to be rolled in for the bone marrow. You gotta love how good Arkansas is about getting patients th...

Arkansas update, or BOOP BLEEP BZZZZ BLAM BLAM BLAM

Those onomatopoeias there reflect but a few seconds worth of the aural cacaphony of an MRI. I had about two hours worth of that plus a ho...

Tuesday, December 28, 2010

Some thoughts on this Revlimid situation...perhaps a false alarm?

Hello folks, and happy holidays. There's been a bit of chatter over the last couple of weeks about Revlimid and its potential linkage ...

Sunday, December 12, 2010

Asymptotes and secondary cancer...

It's been a pretty busy couple of weeks here. At my office I have three half-written posts that never got finished! The first of thes...

Wednesday, November 24, 2010

Tandem transplants proven to create longer life expectancy!!!!

In this study from the Myeloma Beacon , "long-term follow-up results indicate double transplantation is superior to single transplanta...

Thanksgiving and a Forgotten Anniversary

Thursday, November 13, 2008. This was the date that I was diagnosed with Multiple Myeloma, and told that median life expectancy was five ye...

Thursday, November 18, 2010

Crampwatch 2010 continues...

Haven't had one of these in a long time. Night before last I had a pretty sharp on that wasn't nearly as strong as others because i...

Tuesday, November 16, 2010

Where has the time gone?!?!? Highlights from the last month...

Hello folks. Honestly I'm not sure what's happened to the time but I'm alive and well! Some observations from the last month:...

Tuesday, October 19, 2010

The small magnesium pills...

...no longer are any easier to tolerate than the larger ones. It's hard to get a decent night's sleep these days. And yet, I suspe...

Friday, October 15, 2010

No more CYA from Arkansas...

I needed to get a copy of my bloodwork today to get my prescription for Lipitor renewed. Don't know if this is ironic in the proper sen...

Tuesday, October 12, 2010

Where has the time gone??? Also, 4 is better than 2 + 2.

Sorry to have vanished here, folks. Work flared up and I also found myself traveling to London for about a week, which was delightful other...

Wednesday, September 22, 2010

Two questions asked of Dr. GD in light of the weekend...

First of all, feeling much better, thank you all! Second, some of you folks will remember -- and some of my friends in the UK may get a ki...

Tuesday, September 21, 2010

Lose weight now, ask me how!

Not Herbalife, folks. I got a pretty nasty bug on Saturday. Turned into a fever by Saturday afternoon. Kept creeping up and eventually g...

Sunday, September 12, 2010

Progress and still doing well, per Arkansas

This last week I had the usual battery of tests. The MRI was particularly long this time as they now do something called DWIBS -- I looked ...

Sunday, September 5, 2010

Calling all homeopaths...or, Peruvian mojo powder?

A friend of mine was talking about something called Maca powder. It's evidently a root similar to a radish grown in the Andes. And app...

Friday, September 3, 2010

Crampwatch 2010...

Haven't had Velcade or Revlimid this week. Split a delicious bottle of Cabernet last night (a 2006 Vineyard 29, for those playing the ...

Thursday, September 2, 2010

Ongoing GI issues...

I am happy to be off meds for a couple of weeks right now. Velcade interferes with the bone marrow biopsy process so I halt Velcade a week ...

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Nick: Los Angeles, CA

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