Nick's Myeloma Blog

I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!

Friday, October 15, 2010

No more CYA from Arkansas...

I needed to get a copy of my bloodwork today to get my prescription for Lipitor renewed. Don't know if this is ironic in the proper sen...

Tuesday, October 12, 2010

Where has the time gone??? Also, 4 is better than 2 + 2.

Sorry to have vanished here, folks. Work flared up and I also found myself traveling to London for about a week, which was delightful other...

Wednesday, September 22, 2010

Two questions asked of Dr. GD in light of the weekend...

First of all, feeling much better, thank you all! Second, some of you folks will remember -- and some of my friends in the UK may get a ki...

Tuesday, September 21, 2010

Lose weight now, ask me how!

Not Herbalife, folks. I got a pretty nasty bug on Saturday. Turned into a fever by Saturday afternoon. Kept creeping up and eventually g...

Sunday, September 12, 2010

Progress and still doing well, per Arkansas

This last week I had the usual battery of tests. The MRI was particularly long this time as they now do something called DWIBS -- I looked ...

Sunday, September 5, 2010

Calling all homeopaths...or, Peruvian mojo powder?

A friend of mine was talking about something called Maca powder. It's evidently a root similar to a radish grown in the Andes. And app...

Friday, September 3, 2010

Crampwatch 2010...

Haven't had Velcade or Revlimid this week. Split a delicious bottle of Cabernet last night (a 2006 Vineyard 29, for those playing the ...

Thursday, September 2, 2010

Ongoing GI issues...

I am happy to be off meds for a couple of weeks right now. Velcade interferes with the bone marrow biopsy process so I halt Velcade a week ...

Sunday, August 29, 2010

Quick statistical clarification...

A reader was kind enough to email me with a couple of questions about my last post and I realize it is not as clear as it might be. There ...

The price of aggressive treatment...

Just heard that somebody who went the aggressive route was in complete remission before his second transplant...and then contracted an oppor...

Wednesday, August 18, 2010

Quick update...and one mans' myalgia is another man's OUCH!

Hi folks. Sorry to have vanished there for a bit. Lack of news plus a brief break for an annual golf vacation took me away from my post fo...

Wednesday, July 21, 2010

Through a glass, darkly

Okay, time to move the post about my GI issues down a bit! :) As I went online to make my dutiful (doody-full?) post about some recent si...

GI Chess -- not for the high-brow

If you know what this picture is from, then you can guess what this post is going to be about. I have remarked before that this is not a ...

Thursday, July 15, 2010

Milk thistle -- hold the thistles please!

First, the second half of my return from Orlando story. To make a long story short, I am learning that spicy food of certain types do not s...

Friday, July 2, 2010

Notes from Orlando and MD Anderson

I just returned from a week in Orlando for my company's annual strategic offsite with our board of directors. A couple of things of no...

Thursday, June 24, 2010

Magnesium dosage worked well

Carl the Greenskeeper once extolled the virtues of Manganese (along with Cinch bugs) in maintaining the grass at Bushwood CC. I'm not ...

Wednesday, June 23, 2010

Oh the irony, or, OUCH!!!!!!!!!!!

So as I was up in the middle of the night, posting my blog update below, I also visited the blog of a fellow Myeloma traveler from New Zeala...

low platelets...

Had my infusion yesterday at GD's office. I got my test results back from the previous week and they looked pretty damn good. The chem...

Monday, June 21, 2010

Alive, well (minus another chest cold), busy and apologetic!

Just wanted to drop by with no particular news other than to point out that I'm still here! I have been buried in work, attempting to ...

Saturday, May 29, 2010

All clear from BB

I am sitting in the Little Rock airport right now, after a successful visit. I have a lot to report, both medically and in terms of local c...

Friday, May 28, 2010

All dressed up and nowhere to go...

So the answer to the question of "can you do a kyphoplasty on vertebrae that have already been through a vertebroplasty?" is ...

Thursday, May 27, 2010

Hello from Arkansas

Or should I say "howdy." We got here Tuesday night and ate a great pizza at Damgoode Pies. One of the things I miss around here...

Friday, May 21, 2010

Neuropathy and other notes

I noticed yesterday that for much of the day, I had a barely perceptible tingle in my feet. I first noticed it around noon and it persisted...

Monday, May 17, 2010

Some random observations

Hello folks. First of all, I got another chest-cold. My darling little son had a runny nose on Mother's Day as I was playing with him...

Wednesday, May 12, 2010

Quick update with good news from my labs last week

Most importantly, serum immunofixation is back to: "No monoclonal proteins detected." Complete remission. Phew! I am prepared ...

Wednesday, May 5, 2010

White counts, side effect roundup, bad dreams, etc.

Howdy folks. So the white count mystery from last week is just that: a mystery. Yesterday they were back down at three-and-change (I'...

Thursday, April 29, 2010

An explosion of granulocytes!

So today I went back to Dr. GD's office for a Velcade infusion. They drew my blood, and came back with the CBC. Interestingly (or per...

Monday, April 26, 2010

No Alpha Lipoic Acid...and now I remember why.

I had taken some Alpha Lipoic Acid for a while, rather sporadically and without too much conviction, during the time I was on thalidomide. ...

Sunday, April 25, 2010

Tingly feet...

Well...I think it's starting to happen. I wouldn't call it painful, I wouldn't even call it distracting, but if I think about i...

Friday, April 23, 2010

Thai food and velcade do not mix...

I have come to the conclusion -- after two similar experiences eating spicy thai food from a restaurant that I used to love -- that either m...

Wednesday, April 21, 2010

Helpful commentary from BJ

I fax the labs -- that my local doctor here has had for two weeks without telling me about them -- and an hour later I get a thoughtful resp...

A bit calmer now...so some perspective!

Thanks for the words of support in response to yesterday's little bump in the road. Having thought about it a bit, of course I wanted ...

Tuesday, April 20, 2010

Unsettling lab results, and GD exposed as a control-the-disease sheep in wolf's clothing!!

Argh. Went to get my Velcade today, and to see GD for my once-a-month visit. Very unsatisfying. I asked to get my lab results. He sai...

Thursday, April 15, 2010

Addendums (end-ums?)

1. Taking Senna Wednesday night too late. Wednesday AM seems like good starting point for next time. 2. My jaw / teeth are not falling ...

Wednesday, April 14, 2010

Fine-tuning maintenance...

I've decided that my haphazard trial and error with respect to Senna (anti-constipation med) is a failed strategy and I need to be more ...

Thursday, April 8, 2010

Platelets and WBC back up

Quick report on a few lab things. This last Tuesday, platelets were up to 85 from 65 the week before. I went off Revlimid per my usual sc...

Wednesday, April 7, 2010

Interesting news from the Myeloma Beacon

There are plenty of blogs out there that report new developments in traditional and alternative cancer therapy and research. My friend Pat ...

Tuesday, April 6, 2010

Hello to two new friends

Still sick here -- inconvenient but not the end of the world. I received an wonderful email last night, passed on by my wife from my wonde...

Thursday, March 25, 2010

I'm alive and (reasonably) well...just been buried at work! So an overdue update!

Hey there folks. Sorry to vanish on you for a bit -- I've been working 18 hours a day, 7 days a week basically for the last two weeks. ...

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Nick: Los Angeles, CA

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