Nick's Myeloma Blog

I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!

Wednesday, April 21, 2010

Helpful commentary from BJ

I fax the labs -- that my local doctor here has had for two weeks without telling me about them -- and an hour later I get a thoughtful resp...

A bit calmer now...so some perspective!

Thanks for the words of support in response to yesterday's little bump in the road. Having thought about it a bit, of course I wanted ...

Tuesday, April 20, 2010

Unsettling lab results, and GD exposed as a control-the-disease sheep in wolf's clothing!!

Argh. Went to get my Velcade today, and to see GD for my once-a-month visit. Very unsatisfying. I asked to get my lab results. He sai...

Thursday, April 15, 2010

Addendums (end-ums?)

1. Taking Senna Wednesday night too late. Wednesday AM seems like good starting point for next time. 2. My jaw / teeth are not falling ...

Wednesday, April 14, 2010

Fine-tuning maintenance...

I've decided that my haphazard trial and error with respect to Senna (anti-constipation med) is a failed strategy and I need to be more ...

Thursday, April 8, 2010

Platelets and WBC back up

Quick report on a few lab things. This last Tuesday, platelets were up to 85 from 65 the week before. I went off Revlimid per my usual sc...

Wednesday, April 7, 2010

Interesting news from the Myeloma Beacon

There are plenty of blogs out there that report new developments in traditional and alternative cancer therapy and research. My friend Pat ...

Tuesday, April 6, 2010

Hello to two new friends

Still sick here -- inconvenient but not the end of the world. I received an wonderful email last night, passed on by my wife from my wonde...

Thursday, March 25, 2010

I'm alive and (reasonably) well...just been buried at work! So an overdue update!

Hey there folks. Sorry to vanish on you for a bit -- I've been working 18 hours a day, 7 days a week basically for the last two weeks. ...

Friday, March 12, 2010

Bone marrow biopsy blemishes and IVIG update

Hello there folks! Two unrelated little things, which we'll do in reverse order. I will be getting IVIG a week from Tuesday, along w...

Monday, March 8, 2010

Feeling better, and some reflections...

Happy Monday, my friends. First, thanks to those of you who were kind enough to write to check up on me! I want to emphasize that when I...

Friday, March 5, 2010

Did somebody get the name of that bus...

Hello folks. I have been in gastro-intestinal hell for the last 36 hours. A hell-spawned conflagration of extremely spicy Thai food for di...

Wednesday, March 3, 2010

Quick update

Chest cold is finally starting to resolve. My white count yesterday was at 4 -- a measly 4. That's basically below normal, and this in...

Thursday, February 25, 2010

The ongoing saga of this chest-cold...

Tuesday night, when I returned from dinner, I felt pretty lousy. I realized I was running a fever. It was getting worse. I hadn't had...

Tuesday, February 23, 2010

IVIG to the rescue?

Got a call from one of the nurses at Arkansas today. I think she must have called the house first and spoken with Jill, who probably report...

Spoke too soon...

Lying on the couch watching some TV last night, all of a sudden a stabbing charlie horse in the bottom of my left foot. There must be somet...

Sunday, February 21, 2010

Oh, and thanks to Sean J for the Magnesium tip!

FYI, I have been trying to keep hydrated and also take magnesium for the leg cramps...and so far, so good. A couple of false alarms last ni...

Sorry to drop off the face of the Earth!

Well, work has been very demanding for the last two weeks. It is good to be back and fully engaged, but it has been a constant stream of wo...

Wednesday, February 10, 2010

A quick response from BB on leg cramps.

I emailed him last night to tell him there's an error on his website (in one place it says Myeloma is not curable!) and I mentioned in p...

Tuesday, February 9, 2010

Thin walls at GD's office...

Got my second infusion of Zometa today. Hopefully when I go back to Arkansas in May, all those bone lesions will be gone. Velcade was upped...

Wednesday, February 3, 2010

Two incidents of acute discomfort, or, OWWWWWWWWWW!!!!!!!!!! !#!&@**#!!!!!!! (and a Velcade schedule comment)

Hello folks. Well, sadly the old portacath pains are back, entirely as a function of poor technique on the part of this nurse at GD's pl...

Sunday, January 31, 2010

Graphs, first in a series: Monoclonal protein

Sorry to take so long with these, folks, but I've had to dig around for some of the data. Once I got to Arkansas I was pretty meticulou...

Thursday, January 28, 2010

Test results in, and the are GOOD!

Hello people. Getting ready to depart Little Rock. It was a very successful little trip! First, my test results, furnished rapidly, in deta...

Tuesday, January 26, 2010

Return to Arkansas, part 1...or I hope God has a good sense of humor!

Dateline: Little Rock. Jill and I are in the Capitol Hotel, where we arrived on Sunday evening. It's about a year ago to the day that w...

Saturday, January 23, 2010

It really stinks having a cold with a suppressed immune response...

I've been up all night, coughing every fifteen minutes. Not quite as bad (in fact nowhere near as bad) as when I got out of the hospita...

Friday, January 22, 2010

Weird blood cells...

So in preparation for what's gonna be a really cool series (I hope) of graphs and charts on this blog I've been entering all my bloo...

Wednesday, January 20, 2010

When it rains, it pours. Or: The Old Grey Mare. Or: Interesting numbers on Velcade.

We are getting a Old Testament-style storm in LA right now. In one sense it's good because the state needs precipitation. But it's...

Wednesday, January 13, 2010

More phantom aches...

It's thankfully fading as I type this, but I awoke this morning with a dull pain (very minor, but I am attuned to these things) in my ba...

Tuesday, January 12, 2010

Another day in GD's chair...

Hello folks. Got my Velcade and a brief visit with GD today. Again, no review of my labs with me and I didn't get a copy. I will make ...

Monday, January 4, 2010

Immunofixation negative still...but what about the shoulder?

Okay, so I managed to PRY out of the people at GD's office that my test as of 12/22 was still immunofixation negative, so that's goo...

A pain in the shoulder...

Well, it's a sleepless night, not due to the dex. I played an atypically bad round of golf on my last day off for the holidays. I made ...

Thursday, December 31, 2009

Happy New Year's Eve

I'm dashing to prepare what has turned into a seven course meal (five courses for six people plus two additional dishes for one in our p...

Tuesday, December 29, 2009

Blood counts...

So I had my weekly infusion appointment. The nice nurse (who is good at accessing the port without pain) informed me she is leaving the off...

A note on hair regrowth...

I realize this topic doesn't have the urgency of some past posts, but I'm in a position to post some interesting observations, at le...

Wednesday, December 23, 2009

Delayed update!

Happy holidays to all of you -- I'm sorry to take so long with this but I am happy to report that I am very busy at work! :) Quick high...

Friday, December 11, 2009

Addendum...

Still need to take Ambien on Thursday nights, evidently! Got about four hours of sleep last night...not good. So next week, continuing to ...

Thursday, December 10, 2009

A gold star for Tim's wife!!!!!

So I took the Dex before bed on Tuesday night and slept like a rock -- for about six hours, anyhow. Then I woke up, ready for bear! Made i...

Monday, December 7, 2009

I'm getting sick and tired of being sick and tired...

Day 11 of this cold, which remains in my chest and sinuses. No real change -- it doesn't get worse, but it doesn't get better. I d...

Thursday, December 3, 2009

Note to self...zzzzzz....must....take....Ambien....

Ugh. Tuesday night four hours sleep with Ambien. Wednesday night forgot to take Ambien, slept for 90 minutes. Cold is lingering -- no surpri...

Tuesday, December 1, 2009

My dreams of being Barry Bonds are over...

Damn. Got the news from the pee-pee doctor today. My testosterone is around 400. The end of normal is 250. I'm squarely in the normal...

Monday, November 30, 2009

Quick update...still here...

Several of you have been so kind as to let me know that you were interested in my progress, since even a chest cold can be a pretty spooky t...

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Nick: Los Angeles, CA

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