Nick's Myeloma Blog

I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!

Tuesday, February 9, 2010

Thin walls at GD's office...

Got my second infusion of Zometa today. Hopefully when I go back to Arkansas in May, all those bone lesions will be gone. Velcade was upped...

Wednesday, February 3, 2010

Two incidents of acute discomfort, or, OWWWWWWWWWW!!!!!!!!!! !#!&@**#!!!!!!! (and a Velcade schedule comment)

Hello folks. Well, sadly the old portacath pains are back, entirely as a function of poor technique on the part of this nurse at GD's pl...

Sunday, January 31, 2010

Graphs, first in a series: Monoclonal protein

Sorry to take so long with these, folks, but I've had to dig around for some of the data. Once I got to Arkansas I was pretty meticulou...

Thursday, January 28, 2010

Test results in, and the are GOOD!

Hello people. Getting ready to depart Little Rock. It was a very successful little trip! First, my test results, furnished rapidly, in deta...

Tuesday, January 26, 2010

Return to Arkansas, part 1...or I hope God has a good sense of humor!

Dateline: Little Rock. Jill and I are in the Capitol Hotel, where we arrived on Sunday evening. It's about a year ago to the day that w...

Saturday, January 23, 2010

It really stinks having a cold with a suppressed immune response...

I've been up all night, coughing every fifteen minutes. Not quite as bad (in fact nowhere near as bad) as when I got out of the hospita...

Friday, January 22, 2010

Weird blood cells...

So in preparation for what's gonna be a really cool series (I hope) of graphs and charts on this blog I've been entering all my bloo...

Wednesday, January 20, 2010

When it rains, it pours. Or: The Old Grey Mare. Or: Interesting numbers on Velcade.

We are getting a Old Testament-style storm in LA right now. In one sense it's good because the state needs precipitation. But it's...

Wednesday, January 13, 2010

More phantom aches...

It's thankfully fading as I type this, but I awoke this morning with a dull pain (very minor, but I am attuned to these things) in my ba...

Tuesday, January 12, 2010

Another day in GD's chair...

Hello folks. Got my Velcade and a brief visit with GD today. Again, no review of my labs with me and I didn't get a copy. I will make ...

Monday, January 4, 2010

Immunofixation negative still...but what about the shoulder?

Okay, so I managed to PRY out of the people at GD's office that my test as of 12/22 was still immunofixation negative, so that's goo...

A pain in the shoulder...

Well, it's a sleepless night, not due to the dex. I played an atypically bad round of golf on my last day off for the holidays. I made ...

Thursday, December 31, 2009

Happy New Year's Eve

I'm dashing to prepare what has turned into a seven course meal (five courses for six people plus two additional dishes for one in our p...

Tuesday, December 29, 2009

Blood counts...

So I had my weekly infusion appointment. The nice nurse (who is good at accessing the port without pain) informed me she is leaving the off...

A note on hair regrowth...

I realize this topic doesn't have the urgency of some past posts, but I'm in a position to post some interesting observations, at le...

Wednesday, December 23, 2009

Delayed update!

Happy holidays to all of you -- I'm sorry to take so long with this but I am happy to report that I am very busy at work! :) Quick high...

Friday, December 11, 2009

Addendum...

Still need to take Ambien on Thursday nights, evidently! Got about four hours of sleep last night...not good. So next week, continuing to ...

Thursday, December 10, 2009

A gold star for Tim's wife!!!!!

So I took the Dex before bed on Tuesday night and slept like a rock -- for about six hours, anyhow. Then I woke up, ready for bear! Made i...

Monday, December 7, 2009

I'm getting sick and tired of being sick and tired...

Day 11 of this cold, which remains in my chest and sinuses. No real change -- it doesn't get worse, but it doesn't get better. I d...

Thursday, December 3, 2009

Note to self...zzzzzz....must....take....Ambien....

Ugh. Tuesday night four hours sleep with Ambien. Wednesday night forgot to take Ambien, slept for 90 minutes. Cold is lingering -- no surpri...

Tuesday, December 1, 2009

My dreams of being Barry Bonds are over...

Damn. Got the news from the pee-pee doctor today. My testosterone is around 400. The end of normal is 250. I'm squarely in the normal...

Monday, November 30, 2009

Quick update...still here...

Several of you have been so kind as to let me know that you were interested in my progress, since even a chest cold can be a pretty spooky t...

Saturday, November 28, 2009

Taking the new immune system out for a spin...

Hello everyone! I hope that those of you in the States had a great Thanksgiving, and those of you everywhere are enjoying your weekend. I,...

Tuesday, November 24, 2009

Blood counts good!

I love the honesty of this blog as I think it is one of its most valuable attributes, as I have said in the past. And I have been willing to...

Monday, November 23, 2009

Dr. Evil stole my mojo, continued

Hello folks! PG-13 rated post here. I had a visit today with Dr. SS, a urologist, about the testosterone situation. Without belaboring th...

Tuesday, November 17, 2009

Good news from today's doctor visit, returning to work, and other stories

Hello folks! First of all, thank you for the emails, comments and other communiques about my return to work. Day two is over now, and it...

Sunday, November 15, 2009

Reflections on the past year

It was a wonderful week in northern California, visiting family and friends and eating a lot of good food and getting those last few lazy da...

Friday, November 13, 2009

Happy anniversary!

Today is the one year anniversary of my diagnosis. It's hard to believe so much has happened...diagnosis, second opinion, third opinion...

Saturday, November 7, 2009

Migraines, nose hair and a new standard for complete remission?

Hello folks. Been a few days so I thought I'd post an update. I went yesterday to get my hair cut, for the first time since March when ...

Wednesday, November 4, 2009

Clarifications on the previous post

I received a comment with some good questions about the previous post from the husband of a patient battling MM, and wanted to elaborate a b...

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Nick: Los Angeles, CA

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