Nick's Myeloma Blog

I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!

Wednesday, July 29, 2009

Hello left hand? Meet the right hand. You guys should talk more often!!!

So there was no surgery this morning. I got up painfully early and went in to make sure my platelets were still in good shape. While there,...

The future of this blog...

Just a very quick note. The end of my primary therapy does not mean the end of this blog. Far from it. After the end of this week, I will ...

Confirmation on the reimmunization issue

In addition to BB saying no reimmunization was necessary, I spoke with SF at City of Hope to get a second opinion on it. At the prestigious...

Pictures of M-spikes and matchstick men...and some random thoughts on a few other things...

Another fairly sleepless night. I attribute this to (1) excitement over my final surgical procedure this AM, removing my central line and r...

Tuesday, July 28, 2009

A note on reimmunization

This is a sufficiently important topic as to deserve its own heading -- I didn't want to bury it in the remarks about my meeting with BB...

Neupogen pain and the penultimate BB meeting

We're getting down to the nitty and the gritty of my primary treatment here. I've been going to the infusion center for my daily lab...

Saturday, July 25, 2009

Vivid dreams and nightmares...

One of the things I noticed at several points during my treatment was my propensity for increased frequency and vividness of dreams. I gene...

Friday, July 24, 2009

Quick update on a few fronts...

First of all, I forgot to mention this yesterday but I finally shed the last couple of pounds from the dex this time out. It was a 15 pound...

Wednesday, July 22, 2009

The worst song by the band Rush...

...is probably one from their little-listened-to self-titled CD. The song is called "I Think I'm Going Bald." And it's a...

Nothing new to report, but one piece of info on shots for those about to undergo this...

Lab results from yesterday very normal. Platelets down to 87, as expected. Whites recovered to 4.4 or so, which is the peak before the cra...

Tuesday, July 21, 2009

Consistent labs, inconsistent points of view on lesser matters

Well, they were quick in the lab and I got the results of yesterday's blood draw, which were consistent with last Thursday. Trace M-pro...

Monday, July 20, 2009

Progress!

First, I am neutropenic. I know this because I am utterly exhausted. It started to hit me yesterday afternoon when I was inexplicably drag...

Saturday, July 18, 2009

(Edited and updated and corrected!) No more chemo, no new information, other than tips on female facial hair

I went into the clinic today and waited for 90 minutes before they were ready for me...slow day but not a lot of nurses working in the infus...

Friday, July 17, 2009

Gunga Din vs. Carl the Greenskeeper, VGPR vs. CR and other errata...

Thank you for all the responses to my previous blog! I'm especially tickled that my Eduardo Gianelli references prompted my big brother...

Wednesday, July 15, 2009

What a difference a day makes (in labs)

This is something that hopefully everybody with this diagnosis -- or anybody looking at their blood on a daily basis for some other reason, ...

A glimpse of normalcy and other observations

Let me begin with observation #1, which I've made before. Ambien has nights were it works brilliantly (the night before this past one I...

Monday, July 13, 2009

Mixed news, mostly good, I suppose...

Okay. We spent a LONG time in the clinic today, but ultimately spent a good hour or so with BB and learned some important things. On balan...

Sunday, July 12, 2009

Weekend visit...

So Jill and I were getting a bit stir crazy around here and we decided to go away for a couple of days to a nearby city...we'll call it ...

Friday, July 10, 2009

A chip in the Chinese Wall...and other stories...

So yesterday was the Fine Needle Aspiration of the tumor deep in my right hip, along with ANOTHER bone marrow biopsy (which I had hoped coul...

Wednesday, July 8, 2009

Four hours in tubes, a conversation with SF and other stories...

So it was quite a day for tests. We picked up our packet of information at 11, went to get my blood drawn and my dressing changed where the...

Back in Little Rock with renewed resolve...

I returned to Little Rock yesterday afternoon following four weeks or so in Los Angeles. The culture shock was palpable. Nonetheless, weath...

Friday, July 3, 2009

Good enough for Michael Jackson...plus some questions

So it's all over the news. Michael Jackson was allegedly taking Propofol for insomnia, of all things. This is the drug that they damn ...

Thursday, July 2, 2009

A number of updates...

Hello folks. It's high time for an update, for a number of reasons...not the least of which is that the image of a poor possessed Linda ...

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Nick: Los Angeles, CA

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