Nick's Myeloma Blog

I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!

Friday, July 3, 2009

Good enough for Michael Jackson...plus some questions

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So it's all over the news. Michael Jackson was allegedly taking Propofol for insomnia, of all things. This is the drug that they damn ...
3 comments:
Thursday, July 2, 2009

A number of updates...

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Hello folks. It's high time for an update, for a number of reasons...not the least of which is that the image of a poor possessed Linda ...
7 comments:
Tuesday, June 30, 2009

A visit from the Noonday Devil

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Interesting turn of phrase, right? I always wondered what set the Noonday Devil apart from other devils. I remember it was one of the part...
5 comments:
Wednesday, June 24, 2009

A visit with Dr. SH, or "stepping outside BB's world for a moment."

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In addition to having my blood drawn yesterday, I spoke with Dr. SH, the hematologist / oncologist in Beverly Hills who diagnosed me back in...
6 comments:
Tuesday, June 23, 2009

A break from Myeloma...some cooking exploits!

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Because it can't always be about cancer...and because, dammit, I'm very proud of what I pulled off last night... One of my favorite ...
8 comments:
Monday, June 22, 2009

Side effect round-up...

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So it was an interesting weekend. Friday night I slept fitfully. Meaning I work up at 4AM, wide awake, unable to get back to sleep. At aro...
7 comments:
Friday, June 19, 2009

Some labs...holding steady, basically

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I'm working from two sets of lab numbers, both old. The first set was from last Friday (the 12th) and the second set from this past Tue...
1 comment:
Thursday, June 18, 2009

Slow news week, folks...

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Boy they take a long time with labs here. I still don't have all my results from LAST FRIDAY. I should get them tomorrow, along with (...
1 comment:
Friday, June 12, 2009

A simple blood draw reminds me of my most embarrassing moment...

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And this one is a doozy. Some of you know this, but others probably don't. I'd forgotten all about it until today, when I went to ...
6 comments:
Thursday, June 11, 2009

Attention Junior Sigmund Freud club...

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As Frank would say, I had a "real swinger of a dream" last night. That's a line of dialogue from the utterly brilliant Manchu...
6 comments:
Tuesday, June 9, 2009

Another FNA? Effin' A!!

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Howdy folks. So, first of all, thanks especially to the people that urged me to buck up in response to my last post, which had a bit of woe-...
6 comments:

Transplant B, Day +13: Plateau blues

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Well, here's where we are. White counts normal, platelets on the rise, CRP falling, red blood counts still low but they'll recover....
5 comments:
Sunday, June 7, 2009

Transplant B, Day +11: "Just Say No"...to Gout

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Not much to report today. They STILL don't have my M-spike from last Thursday...maybe I'll get it tomorrow. I have another blood d...
1 comment:
Saturday, June 6, 2009

Transplant B, Day 10: Back pain explained, nausea returns, Heinrich Himmler's toilet and other stores...

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How's THAT for a headline, eh? :) I got up at 2AM in agony and took another Dilaudid and another Tylenol. I woke up at 9AM, and THANK G...
4 comments:
Friday, June 5, 2009

Transplant B, Day +9: A day for reflection... -and- BACK ON DILAUDID?!?!?!?

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Hello there, folks. First, the labs: WBC at 1.48, so tomorrow (hopefully) I won't be neutropenic. Platelets are at 23; we'll see i...
4 comments:
Thursday, June 4, 2009

Transplant B, Day +8: Turning the corner

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Another uneventful day in the lab. WBC crept up from 0.03 to 0.17, which hopefully means that I have two more days of Neutropenia at most. ...
2 comments:
Wednesday, June 3, 2009

Transplant B, Day +7: Lies, Damn Lies and Statistics

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Uneventful day at the hospital. Whites skyrocketed to 0.03. Immature reticulocytes went up from .24 to .32, so the climb is beginning...pr...
2 comments:
Tuesday, June 2, 2009

Transplant B, Day +6: Platelets and other news...

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So...another uneventful day, for the most part. Whites are at 0.02, which was where they bottomed out before. Hemoglobin still north of 11...
3 comments:
Monday, June 1, 2009

Transplant B, Day +5: Full-blown neutropenia

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As expected, WBC crashed today to 0.16. Hopefully it will only be here another 4-5 days -- we'll be watching closely. I'm sure it ...
2 comments:
Sunday, May 31, 2009

Transplant B, Day +4: Whites hanging on

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Another uneventful day in the infusion center. White counts are around 1, which means tomorrow should be a full-blown crash just like last ...
Saturday, May 30, 2009

Transplant B, Day +3: Temporary white spike...

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Just like last time. The urging of the Neupogen shot made what's left of my poor dying bone marrow give up its white cells, and my WBC ...
1 comment:

Transplant B, Day +2: Maniac Nurse

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Everything seems to be happening more rapidly this time. I'm feeling pretty good. I had one bout of GI issues the night before last, an...
1 comment:
Thursday, May 28, 2009

Transplant B, Day +1: Some things I've learned

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1. It is possible to gain TWENTY POUNDS of water weight in a week. I am so bloated I can barely move. 2. After a transplant, taking a sle...
1 comment:
Wednesday, May 27, 2009

Transplant B, Day 0: Did somebody get the number of that bus...

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I forgot how much this takes outtaya, red blood counts be damned (mine are down to 10.8 at this point...by the way, I track red blood count ...
2 comments:
Tuesday, May 26, 2009

Transplant B, Day -1

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Back from the final round of Melphalan, and the last dose of Dex for this go-round (thank God, as I'm bloated and up 11 pounds and it...
Monday, May 25, 2009

Transplant B, Day -2: Connectivity and Synchronicity

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First, the mundane. White counts continue to climb (8.4 today) as is expected -- the climb before the crash. Red counts basically stable f...
1 comment:
Sunday, May 24, 2009

Transplant B, Day -3

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Uneventful morning. Cold is better, cough almost gone. WBC back up to normal range (6.7) and platelets at 160, which is on the low end of ...
Saturday, May 23, 2009

Is the Opera over? Because we saw Heart perform tonight...

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...and Ann Wilson was singing up a storm. [ba-dum dum] There is a weekend music, food and...err....possum? belt buckle? moonshine?...fest...
2 comments:
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Nick
Los Angeles, CA
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