Nick's Myeloma Blog

I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!

Monday, February 16, 2009

Good Night Saigon...

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It's very hard to go to bed, knowing this will be the last night at home for three months...knowing that tomorrow morning I say good bye...
5 comments:

More nonsense from CIGNA...

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So the good news is I got a phone call saying that the procedures have been approved. This is once again inconsistent as they have also bee...
1 comment:
Sunday, February 15, 2009

The last weekend as a free man...

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...or, if you want to take a more optimistic view of things, the last weekend before I start killing my cancer. I've eaten very well ove...
1 comment:
Thursday, February 12, 2009

Formal start date now set...

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Tuesday, Feb 17. Arrival in Little Rock. Wednesday, Feb 18. Get the apartment (more on this below) set up and shop for all the special thi...
4 comments:
Tuesday, February 10, 2009

Bone marrow confirmation

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Just got a call from CS (Caleb Sumthin-or-other) who is BB's Physician's Assistant. My insurance wants more tests run before they w...
1 comment:

The calm before the storm...

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So we're taking a few days to spend in Northern California with family and a few friends before I move to Little Rock next week. We dro...
1 comment:
Sunday, February 8, 2009

Film Therapy

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So here I am, after virtually no sleep, depressed, feeling sorry for myself and lying in bed trying to watch TV. I upgraded from Tums to Zan...
6 comments:
Saturday, February 7, 2009

Another lousy day

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Worse than yesterday. I am disillusioned, disappointed and angry. If this was a diary, I would write more, but it's not. So let me ju...
4 comments:
Friday, February 6, 2009

A lousy day

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They can't all be good ones, I suppose. We got all our Trust and Will stuff taken care of, and I did our taxes and am trying to get the ...
Thursday, February 5, 2009

Q&A with CS, BB's Physician's Assistant

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Upon reviewing the recording I made of the second consult with BB, he really wants to do induction, transplants AND consolidation therapy in...
3 comments:
Tuesday, February 3, 2009

City of Hope and a first decision made...

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We went out to City of Hope and toured the place, including perhaps most importantly the hospital for stem cell transplants. It's a bea...
7 comments:
Monday, February 2, 2009

A few important facts and figures from BB's data

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Based on a number of conversations and excellent questions from friends, I wanted to share a little bit of data that should give you some id...
2 comments:
Saturday, January 31, 2009

The second BB consult...

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I had to be relatively (for me, anyhow) brief last night because I was exhausted, but I wanted at least to post that I was low-risk for Tota...
Friday, January 30, 2009

Day 5...a major hurdle is cleared

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Okay. So after the utter horror of yesterday, I had a splendid dinner at a restaurant called Ashley's. It was about half the price of ...
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I'm very sorry about the last post...

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Because I was so angry...it was a sloppy post. I left out reason #2A that I was very proud of and forgot to include it in the list.
2 comments:
Thursday, January 29, 2009

Day 4...hilarity and inhumanity...

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I originally titled this something far more dark, because I end this day in a mood that questions any effort I have to fight this sh*t. But ...
12 comments:

BB's clinic day 3

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Sorry no update yesterday, but it was a very long day. We had a meeting with BB himself, which is evidently a rarity and reflects the effica...
1 comment:
Wednesday, January 28, 2009

Rude awakening...

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I dreamt vividly -- I wasn't sick. Life was like it was before. Then the alarm went off. And instead of laughing with my children like...
3 comments:
Tuesday, January 27, 2009

Day two at BB's clinic...

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...and it was another long one. I've got so many holes in me now I don't know what to do. First, one thing I neglected to mention f...
1 comment:
Monday, January 26, 2009

Day one at BB's clinic...

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We arrived last night, and had dinner with BB's very sweet but alarmist assistant, who was very kind to us and seemed to agree with me t...
3 comments:
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Nick
Los Angeles, CA
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