Sunday, February 8, 2009

Film Therapy

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So here I am, after virtually no sleep, depressed, feeling sorry for myself and lying in bed trying to watch TV. I upgraded from Tums to Zan...
6 comments:
Saturday, February 7, 2009

Another lousy day

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Worse than yesterday. I am disillusioned, disappointed and angry. If this was a diary, I would write more, but it's not. So let me ju...
4 comments:
Friday, February 6, 2009

A lousy day

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They can't all be good ones, I suppose. We got all our Trust and Will stuff taken care of, and I did our taxes and am trying to get the ...
Thursday, February 5, 2009

Q&A with CS, BB's Physician's Assistant

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Upon reviewing the recording I made of the second consult with BB, he really wants to do induction, transplants AND consolidation therapy in...
3 comments:
Tuesday, February 3, 2009

City of Hope and a first decision made...

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We went out to City of Hope and toured the place, including perhaps most importantly the hospital for stem cell transplants. It's a bea...
7 comments:
Monday, February 2, 2009

A few important facts and figures from BB's data

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Based on a number of conversations and excellent questions from friends, I wanted to share a little bit of data that should give you some id...
2 comments:
Saturday, January 31, 2009

The second BB consult...

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I had to be relatively (for me, anyhow) brief last night because I was exhausted, but I wanted at least to post that I was low-risk for Tota...
Friday, January 30, 2009

Day 5...a major hurdle is cleared

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Okay. So after the utter horror of yesterday, I had a splendid dinner at a restaurant called Ashley's. It was about half the price of ...
8 comments:

I'm very sorry about the last post...

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Because I was so angry...it was a sloppy post. I left out reason #2A that I was very proud of and forgot to include it in the list.
2 comments:
Thursday, January 29, 2009

Day 4...hilarity and inhumanity...

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I originally titled this something far more dark, because I end this day in a mood that questions any effort I have to fight this sh*t. But ...
12 comments:

BB's clinic day 3

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Sorry no update yesterday, but it was a very long day. We had a meeting with BB himself, which is evidently a rarity and reflects the effica...
1 comment:
Wednesday, January 28, 2009

Rude awakening...

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I dreamt vividly -- I wasn't sick. Life was like it was before. Then the alarm went off. And instead of laughing with my children like...
3 comments:
Tuesday, January 27, 2009

Day two at BB's clinic...

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...and it was another long one. I've got so many holes in me now I don't know what to do. First, one thing I neglected to mention f...
1 comment:
Monday, January 26, 2009

Day one at BB's clinic...

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We arrived last night, and had dinner with BB's very sweet but alarmist assistant, who was very kind to us and seemed to agree with me t...
3 comments:
Saturday, January 24, 2009

More insurance woes...

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This time disability-related. Disney self-insures and when I spoke with our head of corporate HR about my condition, he was very helpful and...
3 comments:
Friday, January 23, 2009

CIGNA is an ulcerated boil on Satan's backside...

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Just had the most irritating event today. Jill and I are flying to Arkansas by way of Memphis on Sunday AM to go to BB's clinic for a w...
4 comments:
Wednesday, January 21, 2009

BD's consult

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After a snafu with BD's office, I managed to have a brief consult with him. It was quick, but it was very valuable. Here's what I ...
2 comments:

Side effect run down, and some thanks

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Not in that order. I want to thank those who are following my blog and those who are taking the time to post comments and/or email me. I...
Tuesday, January 20, 2009

The blues...

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Not feeling that great today. I bade farewell to the office today and that was another example of reality setting in. I've been readin...
3 comments:

Quick update

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Not too much of substance here but I'm overdue for a brief update. I'm working out my long list of questions for BB, which should in...
Friday, January 16, 2009

Two doctor consults, BB's overzealous assistant explains herself, and Hannah Montana

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I spoke yesterday with Dr. BC, who treated my friend RH's father DH for myeloma and gave him an allogeneic transplant six or seven years...