Tuesday, February 3, 2009

City of Hope and a first decision made...

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We went out to City of Hope and toured the place, including perhaps most importantly the hospital for stem cell transplants. It's a bea...
7 comments:
Monday, February 2, 2009

A few important facts and figures from BB's data

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Based on a number of conversations and excellent questions from friends, I wanted to share a little bit of data that should give you some id...
2 comments:
Saturday, January 31, 2009

The second BB consult...

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I had to be relatively (for me, anyhow) brief last night because I was exhausted, but I wanted at least to post that I was low-risk for Tota...
Friday, January 30, 2009

Day 5...a major hurdle is cleared

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Okay. So after the utter horror of yesterday, I had a splendid dinner at a restaurant called Ashley's. It was about half the price of ...
8 comments:

I'm very sorry about the last post...

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Because I was so angry...it was a sloppy post. I left out reason #2A that I was very proud of and forgot to include it in the list.
2 comments:
Thursday, January 29, 2009

Day 4...hilarity and inhumanity...

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I originally titled this something far more dark, because I end this day in a mood that questions any effort I have to fight this sh*t. But ...
12 comments:

BB's clinic day 3

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Sorry no update yesterday, but it was a very long day. We had a meeting with BB himself, which is evidently a rarity and reflects the effica...
1 comment:
Wednesday, January 28, 2009

Rude awakening...

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I dreamt vividly -- I wasn't sick. Life was like it was before. Then the alarm went off. And instead of laughing with my children like...
3 comments:
Tuesday, January 27, 2009

Day two at BB's clinic...

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...and it was another long one. I've got so many holes in me now I don't know what to do. First, one thing I neglected to mention f...
1 comment:
Monday, January 26, 2009

Day one at BB's clinic...

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We arrived last night, and had dinner with BB's very sweet but alarmist assistant, who was very kind to us and seemed to agree with me t...
3 comments:
Saturday, January 24, 2009

More insurance woes...

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This time disability-related. Disney self-insures and when I spoke with our head of corporate HR about my condition, he was very helpful and...
3 comments:
Friday, January 23, 2009

CIGNA is an ulcerated boil on Satan's backside...

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Just had the most irritating event today. Jill and I are flying to Arkansas by way of Memphis on Sunday AM to go to BB's clinic for a w...
4 comments:
Wednesday, January 21, 2009

BD's consult

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After a snafu with BD's office, I managed to have a brief consult with him. It was quick, but it was very valuable. Here's what I ...
2 comments:

Side effect run down, and some thanks

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Not in that order. I want to thank those who are following my blog and those who are taking the time to post comments and/or email me. I...
Tuesday, January 20, 2009

The blues...

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Not feeling that great today. I bade farewell to the office today and that was another example of reality setting in. I've been readin...
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Quick update

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Not too much of substance here but I'm overdue for a brief update. I'm working out my long list of questions for BB, which should in...
Friday, January 16, 2009

Two doctor consults, BB's overzealous assistant explains herself, and Hannah Montana

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I spoke yesterday with Dr. BC, who treated my friend RH's father DH for myeloma and gave him an allogeneic transplant six or seven years...
Thursday, January 15, 2009

Thoughts on last night's scare, and a nice call with SF

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I like BB.  It was great that he called, and he did put me at ease. I also received a call from SF, whom I had told about the dire email I r...
2 comments:
Wednesday, January 14, 2009

Okay, spoke with BB...

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I like this guy -- he called me after his dinner ended at 11PM his time.  It seems his assistant / clinician MAY have overstated things. My ...

The worst thing about this, by the way...

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...is that now people need to scroll down to see that sweet photo of Jack Elam.  :)
3 comments:

Bad news...

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Probably very bad news, actually. I received word from BB's office that based on my chromosome 1 abnormality, which most people do not a...
Tuesday, January 13, 2009

Quick update on a few things...

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Well, we got started on the will and trust for the kids today. Overdue, and not exactly uplifting, but I felt very responsible when we finis...
Monday, January 12, 2009

Consult with Dr. KA, and some pleasant surprises...

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Well, not in that order, exactly. Pleasant Surprise #1: I got my Vicodin prescription (750mg pills), but rather than take one of those, I t...
4 comments: