Wednesday, January 14, 2009

Okay, spoke with BB...

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I like this guy -- he called me after his dinner ended at 11PM his time.  It seems his assistant / clinician MAY have overstated things. My ...

The worst thing about this, by the way...

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...is that now people need to scroll down to see that sweet photo of Jack Elam.  :)
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Bad news...

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Probably very bad news, actually. I received word from BB's office that based on my chromosome 1 abnormality, which most people do not a...
Tuesday, January 13, 2009

Quick update on a few things...

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Well, we got started on the will and trust for the kids today. Overdue, and not exactly uplifting, but I felt very responsible when we finis...
Monday, January 12, 2009

Consult with Dr. KA, and some pleasant surprises...

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Well, not in that order, exactly. Pleasant Surprise #1: I got my Vicodin prescription (750mg pills), but rather than take one of those, I t...
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Thursday, January 8, 2009

A visit to Dr. SH...

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So I went back to the first doctor, where this all started in mid November, to bring him up to date on my thinking and to try to do somethin...
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Wednesday, January 7, 2009

Myeloma waits for no man...

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Boy did I have plans. My band was going to headline a festival in late March, my annual Las Vegas trip for the Final Four (watch this be th...
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Monday, January 5, 2009

Ribs...

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It's getting very painful. I feel like with every deep breath one of the ribs on the right side of my body is going to break. I'm ...
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Sunday, January 4, 2009

Bone pain and something of a bummer...

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The pain in my back is better and certainly has improved since the golf round, but the pain in my ribs is more persistent now. I'm conc...
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Friday, January 2, 2009

Could a consensus be building?

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Had a very productive appointment with Dr. SF at City of Hope. At the end of the appointment, I explained my frustration with the administr...
Thursday, January 1, 2009

No more golf

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Well today I tried to play golf for the first time since the diagnosis. My back pain has been present but manageable so I popped a vicodin ...

Happy New Year...and a change in luck

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I took Jill out to dinner last night at Spago to celebrate New Year's Eve. Actually, more to say a giant "screw you 2008" but...
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Tuesday, December 30, 2008

City of Dopes strikes again...

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I'm really starting to be bothered by the utter ineptitude of the administrative people there. First, they claimed (incorrectly) that I...
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Monday, December 29, 2008

Get down with the sickness...

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I'm sure the title will be lost on most of you, but it's a song title. As it happens, it also relates to chemotherapy. I've ment...

City of Dopes

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These people, administratively, leave a lot to be desired. We got a call at home today, informing me that my appointment tomorrow has been u...
Sunday, December 28, 2008

New resolve

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I've been doing more reading on Dr. BB's work (almost slipped up and used his full name...although who am I kidding, anybody who doe...
Saturday, December 27, 2008

A lousy day

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Today's been rough. I've been reading a few other blogs from people that have gone through what I'm about to go through and the...
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Friday, December 26, 2008

A few more things before my return to City of Hope...

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Well, I've come a long way in terms of my knowledge of the disease since the last time I met with Dr. SF. He told me that on some level...
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Casting the net wide...or, crackpots and kooks and quacks, oh my!

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I am a big fan of Western medicine. At the same time, I do believe that the mind and body are one, and that having a positive attitude will ...
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The MMRF and Kathy Giusti

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I'll use a full name, not initials, for this remarkable woman. The previous day, before I was going to see Dr. ML, PinnacleCare had conn...
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Research and a visit with Dr. ML

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Over the following several days, I did some of my own reading and research, and asked PinnacleCare to do the same. They pulled together sta...
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Saturday, December 20, 2008

Doctor proliferation...

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Since there's no cure for MM, and there have been a lot of new drugs developed in the last 10 years to help combat it, there are a myria...
Friday, December 19, 2008

City of Hope, First Visit

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A couple of weeks later, I went to Dr. SF at the City of Hope. City of Hope is one of the top cancer centers in the US -- it has a huge cam...
Thursday, December 18, 2008

More research before the second opinion

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Dr. SH advised me to keep off the Internet...it's a very depressing place for this, filled with old research, backward-looking forecasts...

Dr. SH Explains My Diagnosis and Treatment Options

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On Friday, November 14th I went with Jill to Dr. SH's office. We sat down and Dr. SH gave us a very thorough briefing on the disease, a...