Nick's Myeloma Blog

I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!

Thursday, January 1, 2009

No more golf

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Well today I tried to play golf for the first time since the diagnosis. My back pain has been present but manageable so I popped a vicodin ...

Happy New Year...and a change in luck

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I took Jill out to dinner last night at Spago to celebrate New Year's Eve. Actually, more to say a giant "screw you 2008" but...
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Tuesday, December 30, 2008

City of Dopes strikes again...

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I'm really starting to be bothered by the utter ineptitude of the administrative people there. First, they claimed (incorrectly) that I...
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Monday, December 29, 2008

Get down with the sickness...

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I'm sure the title will be lost on most of you, but it's a song title. As it happens, it also relates to chemotherapy. I've ment...

City of Dopes

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These people, administratively, leave a lot to be desired. We got a call at home today, informing me that my appointment tomorrow has been u...
Sunday, December 28, 2008

New resolve

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I've been doing more reading on Dr. BB's work (almost slipped up and used his full name...although who am I kidding, anybody who doe...
Saturday, December 27, 2008

A lousy day

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Today's been rough. I've been reading a few other blogs from people that have gone through what I'm about to go through and the...
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Friday, December 26, 2008

A few more things before my return to City of Hope...

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Well, I've come a long way in terms of my knowledge of the disease since the last time I met with Dr. SF. He told me that on some level...
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Casting the net wide...or, crackpots and kooks and quacks, oh my!

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I am a big fan of Western medicine. At the same time, I do believe that the mind and body are one, and that having a positive attitude will ...
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The MMRF and Kathy Giusti

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I'll use a full name, not initials, for this remarkable woman. The previous day, before I was going to see Dr. ML, PinnacleCare had conn...
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Research and a visit with Dr. ML

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Over the following several days, I did some of my own reading and research, and asked PinnacleCare to do the same. They pulled together sta...
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Saturday, December 20, 2008

Doctor proliferation...

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Since there's no cure for MM, and there have been a lot of new drugs developed in the last 10 years to help combat it, there are a myria...
Friday, December 19, 2008

City of Hope, First Visit

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A couple of weeks later, I went to Dr. SF at the City of Hope. City of Hope is one of the top cancer centers in the US -- it has a huge cam...
Thursday, December 18, 2008

More research before the second opinion

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Dr. SH advised me to keep off the Internet...it's a very depressing place for this, filled with old research, backward-looking forecasts...

Dr. SH Explains My Diagnosis and Treatment Options

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On Friday, November 14th I went with Jill to Dr. SH's office. We sat down and Dr. SH gave us a very thorough briefing on the disease, a...
Wednesday, December 17, 2008

The Life-Changing Phone Call

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...or so I thought. Two days later, on November 13th, I got a call around 2:30PM from Dr. SH. He told me that he had looked at my bone marr...
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First visit to Dr. SH

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I went to visit Dr. SH on Nov. 7, 2008 to do further diagnostics. I had so much blood drawn that I told the Doctor if I didn't have ane...
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What is Myeloma (Basic version)

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So what exactly is this thing? While Dr. PZ in his non-alarmist way referred to it obliquely as a "malignancy of the blood" it is,...
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Diagnosis

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Many of you know this already...but I've got some catching up to do for those who don't and if I'm going to do this blog thing r...
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Blog Basics

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Just some basics up-front to help you make heads or tails of all this. I'm going to publish more or less in the order that my own unders...
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Nick
Los Angeles, CA
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