Hello friends. I'm sorry it's been so long between updates -- things have been rather busy with my day job of late, as well as my hobby. That and general good health make for limited updates here.
In part, I didn't update anything on my decision about whether to continue to be seen by the folks at UAMS in Little Rock versus following my beloved Dr. BB to Mount Sinai here in Manhattan because I hadn't yet made a decision. And in a sense, although I'm currently sitting in a waiting room on the upper east side of NYC, I still haven't.
My primary concern with following Dr. Barlogie is that he is no longer the big fish. He is on the staff of his former colleague Dr. SJ, and things will roll along here in large part consistent with the existing culture. This means it's been very hard to schedule (though a change in my insurance carrier didn't help either). I'm trying to do something very simple and in sequence: access my port for blood and other dirty work, get a PET scan (using that port for the tracer), get by knocked out one time, have a bone marrow biopsy and a targeted fine needle aspiration guided by the PET to sample any unresolved lesions in the bone, and talk with the doctor.
The over-under on things that go wrong with that plan is four. I suspect I will leave here without the fine needle aspiration done, for one thing, and that I'll be stuck full of holes anew. Having established those odds...I'm still leaning towards taking the over.
For this reason -- and because after all Dr. BB is in the third act of his career, so to speak -- I'm reticent to pull up all stakes at UAMS. I want to keep a foot in both ponds, at least until I see how things tick up here in NYC. So I'm leaning towards getting my testing done here and then doing a phone consult with the folks at UAMS, versus having two sets of tests done.
We shall see if that is permitted.
Meanwhile, I'm waiting to be called but I already miss certain "homey" touches from Arkansas. I was counting on a tissue and a cup of coffee and they have neither, and the familiar faces from the infusion center at Little Rock are of course missing.
On the other hand, I have more food choices this week than was the case in Little Rock. And I have a fair amount of work I can get done in this great city. So onward we go, with a foot in both ponds for the time being.
Real-time update: a big hug from the irrepressible BJ has just made everything seem great here. :)
Subscribe to:
Post Comments (Atom)
Nick, I'm very interested in your experience in NYC. I go to LR in three weeks and look forward to visiting all (minus BB and BJ), You were pretty much right on about my response to TT4. Don't stay away for so long.
ReplyDeleteCraig
I want to write a little testimony about the good work of doctor ehiaguna who cured me from Hsv 1 and 2 for just 2 week with his herbal medicine, I never believe I can be normal again and have a good life like others I always regretted the day I got diagnose with the virus, I was lost of hope when my doctor told me there is no cure for it but I keep thinking and thinking about my future, if I can have kids of my own well I am so grateful for my helper who get me cured with his herbal medicine, I go online in search of anything that can help me because I can’t deal with it forever so I found this doc ehiaguna email on a blog of someone who was cured by him I quickly contact him for help and explain all my pain to him, he told me not to worry about it there is cure for real, I never believe until he send me the herbal medicine when I order for it and I have it within 4 days that is how I took the medicine for 2 week and the following week I go for test just to confirm I was 100% cured from this sickness what a miracle in my life I am so happy right now, you can also get in contact with him if you have such sickness through drehiaguna@gmail.com and also WhatsApp him +2348073908953... And He also have herbs medicine to cured the following diseases; eczema,urethra wart,chronic problems.Herpes, Cancer, Als,Hepatitis, Diabetes, HPV,Infections,ulcer ETC
DeleteNick, I am also very interested in how it goes there. I don't know for sure what I am going to do either.
ReplyDeleteI don't know if you have been to Little Rock since BB left, but we went in October and felt that our experience at UAMS had also changed. We waited in a not very crowded waiting area to see the new doc. I will say that we had coffee and tissues though.
I think that my new doc is probably very competent, but I did not leave the visit with the same uplifted feeling with which we left after talking with BB. The visit seemed more clinical and less personal.
I have some of the same concerns that you stated about moving to NYC to see BB. Another concern is that I read that Mt Sinai would not offer conscious sedation for my BMB. I had some that were very manageable, and then had a HORRIBLE one. I have requested and received conscious sedation ever since. Not sure how to find out about this, if you have any idea I would appreciate the input.
Also interested in how you went about setting up your appt. in NYC.
Best of luck - Ed
I wish I knew you were in NYC. I had an appt with Dr. SJ yesterday. We could have met for a cup of coffee. I know were they keep it at Mt. Sinai
ReplyDeleteFWIW: I've had my case co-managed for the past couple of years between Dr. V at Cedars and a local, but very knowledgeable hemotologic oncologist nearby in Torrance. The purpose is to save me from making regular trips to Beverly Hills from the beach. Point is, this co-management thing works out just fine. They cooperate nicely. Dr. V has final say, given that Myeloma is his expertise. Would some soft of co-management work out for you as well? Or would politics interfere?
ReplyDeleteAsset health work with patients and physicians in various cancer treatment centers in ca and provide effective therapeutic programs that helps to improve their health. Through research and clinical practice we assess the causes and deliver the right treatments.
ReplyDeleteALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM MYELOMA
ReplyDeleteIs my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from myeloma. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her myeloma and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from myeloma. and now she very mush okay without any side effects whatsoever, If you have myeloma , you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.
My name is donald boykins , am here to appreciate Dr Akhigbe for using his herbal medicine to cure my Herpes virus. Is about 3 years and 6 months now I have been living with this virus and it has been a serious problem to me, I was so confused cause i have been taking several drugs to be cured but all of my effort was in vain,one morning i was browsing through the internet then i saw several testimonies about Dr. Akhigbe curing people from Herpes virus and immediately i contacted Dr. Akhigbe on his email: drrealakhigbe@gmail.com, i told him about my troubles and he told me that i must be cured, he gave me some instructions and which i rightly followed. so he prepared a herbal medicine and sent it to me which i used for 2 weeks and i was cured everything was like a dream to me and my Herpes virus was totally gone, dr .Akhigbe, God bless you and give you more power and ability for more cures.i dont know if there is any one out there suffering for herpes virus or any of these diseases..DIABETES, CANCER, HIV/AIDS, HERPES HEPATITiES A AND B DISEASES .etc why don't you contact dr.Akhigbe today and be free from your diseases because he is very good and honest Doctor and he is also called the godfather of habalism contact him via email; drrealakhigbe@gmail.com or whatsApp him on +2348142454860
ReplyDeleteALL THANKS TO DR WILLIAMS
ReplyDeleteI was diagnosed of myeloma in 2011, I have tried all possible means to get cure but all my effort proved abortive, until a friend of mine introduced me to a herbal doctor , who prepare herbal medicine to cure different kind of diseases including myeloma , when i contacted this herbal doctor via his email, he sent me the myeloma herbal medicine via courier service, when i received the herbal medicine he gave me step by step instructions on how to apply it, when i applied it as instructed by Dr Williams i was totally cured from this disease within 1 months of usage. any body with similar problem can Contact this great herbal doctor via his email drwilliams098675@gmail.com for advice and for his product,and thanks to you admin for such an informative blog.
As a sign of gratitude for how my wife was saved from myeloma, i decided to reach out to those still suffering from this.
ReplyDeleteMy wife suffered myeloma in the year 2016 and it was really tough and heartbreaking for me because she was my all and the symptoms were terrible, she always complain of bone pain, and she always have difficulty falling asleep . we tried various therapies prescribed by our neurologist but none could cure her. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and they left the contact of this doctor who had the cure to myeloma . I never imagined myeloma has a natural cure not until i contacted him and he assured me my wife will be fine. I got the herbal medication he recommended and my wife used it and in one months time she was fully okay even up till this moment she is so full of life. myeloma has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks admin for such an informative blog.
ALL THANKS TO DR WILLIAMS
ReplyDeleteI was diagnosed of myeloma in 2011, I have tried all possible means to get cure but all my effort proved abortive, until a friend of mine introduced me to a herbal doctor , who prepare herbal medicine to cure different kind of diseases including myeloma , when i contacted this herbal doctor via his email, he sent me the myeloma herbal medicine via courier service, when i received the herbal medicine he gave me step by step instructions on how to apply it, when i applied it as instructed by Dr Williams i was totally cured from this disease within 1 months of usage. any body with similar problem can Contact this great herbal doctor via his email drwilliams098675@gmail.com for advice and for his product,and thanks to you admin for such an informative blog.
Thank you for the wonderful suggestions, this is really a very good blog and these tips are very useful for cancer patients
ReplyDeletepomalid 1mg,pomalid 1mg capsules
pomalid 2mg,pomalid 2mg capsules
pomalid 4mg,pomalid 4mg capsules
I'm 55-year-old from Korean, I was diagnosed with second-stage liver cancer following a scheduled examination to monitor liver cirrhosis. I had lost a lot of weight. A CT scan revealed three tumors; one in the center of my liver in damaged tissue and two in healthy portions of my liver. No chemotherapy or radiotherapy treatment was prescribed due to my age, the number of liver tumors. One month following my diagnosis I began taking 12 (350 point) Salvestrol supplements per day, commensurate with my body weight. This comprised six Salvestrol Shield (350 point) capsules and six Salvestrol Gold (350 point) capsules, spread through the day by taking two of each capsule after each main meal. This level of Salvestrol supplementation (4,000 points per day) was maintained for four months. In addition, I began a program of breathing exercises, chi exercises, meditation, stretching and stress avoidance. Due to the variety of conditions that I suffered from, I received ongoing medical examinations. Eleven months after commencing Salvestrol supplementation But all invalid so I keep searching for a herbal cure online that how I came across a testimony appreciating Dr Itua on how he cured her HIV/Herpes, I contacted him through email he listed above, Dr Itua sent me his herbal medicine for cancer to drink for two weeks to cure I paid him for the delivering then I received my herbal medicine and drank it for two weeks and I was cured until now I'm all clear of cancer, I will advise you to contact Dr Itua Herbal Center On Email...drituaherbalcenter@gmail.com. WhatsApps Number...+2348149277967. If you are suffering from Diseases listed below, Cancer, HIV/Aids, Herpes Virus,Bladder cancer,Brain cancer,Colon-Rectal Cancer,Breast Cancer,Prostate Cancer,
ReplyDelete?Esophageal cancer,?Gallbladder cancer,Gestational trophoblastic disease,Head and neck cancer,?Hodgkin lymphoma
?Intestinal cancer,Kidney cancer,Leukemia,Liver cancer,Lung cancer,Melanoma,Mesothelioma,?Multiple myeloma,?Neuroendocrine tumors,Non-Hodgkin lymphoma,?Oral cancer,Ovarian cancer,?Sinus cancer,Skin cancer,Soft tissue sarcoma,Spinal cancer,Stomach cancer,Testicular cancer,Throat cancer,Thyroid Cancer,?Uterine cancer,Vaginal cancer,?Vulvar cancer,Hepatitis, Chronic Illness. Lupus,Fibromyalgia.
I want to write a little testimony about the good work of doctor ehiaguna who cured me from Hsv 1 and 2 for just 2 week with his herbal medicine, I never believe I can be normal again and have a good life like others I always regretted the day I got diagnose with the virus, I was lost of hope when my doctor told me there is no cure for it but I keep thinking and thinking about my future, if I can have kids of my own well I am so grateful for my helper who get me cured with his herbal medicine, I go online in search of anything that can help me because I can’t deal with it forever so I found this doc ehiaguna email on a blog of someone who was cured by him I quickly contact him for help and explain all my pain to him, he told me not to worry about it there is cure for real, I never believe until he send me the herbal medicine when I order for it and I have it within 4 days that is how I took the medicine for 2 week and the following week I go for test just to confirm I was 100% cured from this sickness what a miracle in my life I am so happy right now, you can also get in contact with him if you have such sickness through drehiaguna@gmail.com and also WhatsApp him +2348073908953... And He also have herbs medicine to cured the following diseases; eczema,urethra wart,chronic problems.Herpes, Cancer, Als,Hepatitis, Diabetes, HPV,Infections,ulcer ETC
ReplyDeleteHerpes is a sexually transmitted virus that primarily infects the mouth and the genitals. It is transmitted by bodily fluids – penetration isn’t required for transmission, oral-oral or oral-genital contact will suffice.I WAS ONCE HERPES SIMPLEX VIRUS patient, I have HSV-I genitally and I'm one of the rare cases where I was infected by sexual contact. The person who infected me was unaware that he had it, and he tested negative on a blood test (he probably got it from his mother at birth and never had an outbreak in his life).I'm sure I have HSV-I (they did a culture of the fluid from the sores i had during my initial outbreak). So it is possible to contract HSV-I by asymptomatic asexual contact, so please people talk about this and prevent anyone else from getting it, I'm kind of going through something. Four years ago my love and I both had an OB and when I got the blood work done it came back negative. We were happy in the relationship so I learned to accept it and never really bothered to get tested again. Now, that we broke up I decided to get tested again. I came back negative for both HSV-1 and HSV-2 (got the news!) and have not had an OB since the initial one four years ago. My X on the other hand has had a few small outbreaks and never came back positive for HSV-1.Only the help of Dr Afrid where able to help me out with is Root and Herbs, if you are having any type of this disease or infection like HIV,CANCER OR ANY disease kindly email doctor Afrid for cure:( drafridherbalhome@gmail.com ) or Whatsapp him on +2349057260738.
ReplyDeleteHerpes is a sexually transmitted virus that primarily infects the mouth and the genitals. It is transmitted by bodily fluids – penetration isn’t required for transmission, oral-oral or oral-genital contact will suffice.I WAS ONCE HERPES SIMPLEX VIRUS patient, I have HSV-I genitally and I'm one of the rare cases where I was infected by sexual contact. The person who infected me was unaware that he had it, and he tested negative on a blood test (he probably got it from his mother at birth and never had an outbreak in his life).I'm sure I have HSV-I (they did a culture of the fluid from the sores i had during my initial outbreak). So it is possible to contract HSV-I by asymptomatic asexual contact, so please people talk about this and prevent anyone else from getting it, I'm kind of going through something. Four years ago my love and I both had an OB and when I got the blood work done it came back negative. We were happy in the relationship so I learned to accept it and never really bothered to get tested again. Now, that we broke up I decided to get tested again. I came back negative for both HSV-1 and HSV-2 (got the news!) and have not had an OB since the initial one four years ago. My X on the other hand has had a few small outbreaks and never came back positive for HSV-1.Only the help of Dr Afrid where able to help me out with is Root and Herbs, if you are having any type of this disease or infection like HIV,CANCER OR ANY disease kindly email doctor Afrid for cure:( drafridherbalhome@gmail.com ) or Whatsapp him on +2349057260738.
ReplyDelete