tag:blogger.com,1999:blog-5398956932575790.post5568590901139452598..comments2024-01-23T21:37:27.869-08:00Comments on Nick's Myeloma Blog: Return to Arkansas, part 1...or I hope God has a good sense of humor!Nickhttp://www.blogger.com/profile/09733312143898687572noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5398956932575790.post-57818369108070101882010-01-27T12:54:30.978-08:002010-01-27T12:54:30.978-08:00You are one funny guy, Nick van Dyk! Thanks for th...You are one funny guy, Nick van Dyk! Thanks for the great post. <br /><br />I'm getting my weekly Velcade drip as I write this. This staff here has taken great pains to try to better understand MM and our treatment protocol. Kudos to them. I'll be in LR next week for my first 3-month checkup and a kyphoplasty or two. I was told that I wouldn't be taking Velcade/Dex next week- maybe I'd better check to be sure. Like you, I just don't want to screw up the plan that seems to be working well.Changing dates also means that I have to adjust the three years of spreadsheets that I've built. No biggie, so much for being proactive. ;) The staff here is amazed that I chart everything. Seems that many patients want to remain in the dark. Let there be light and no light chains!<br /><br />Thanks for keeping BB laughing. As they say, when momma is happy, everybody is happy. Wishing you great news in LR. Hey to Jill. <br /><br />Sean - getting ready to get snowed on in the Ozarks.Sean Murrayhttps://www.blogger.com/profile/06954782169183374420noreply@blogger.comtag:blogger.com,1999:blog-5398956932575790.post-86670282501726081512010-01-26T11:49:50.064-08:002010-01-26T11:49:50.064-08:00Nick:
When I did Velcade, it was on a two-week on,...Nick:<br />When I did Velcade, it was on a two-week on, 1 week off schedule. I got two doses per week for two weeks and then nothing the third week. This went on for about 6 cycles. However, my situation was somewhat different in that it was my first line of treatment and I was only doing Velcade/Dex. It was not an induction or maintenance plan. It was THE plan. FWIW.<br /><br />Also, I have managed to keep my weight pretty well in check despite massive doses of Dex in maintenance mode...with the help of a very talented dietician whom I can introduce you to when you get back to town and we get a chance to meet.<br /><br /><br /><br />EdEd (Blog Adminstrator)https://www.blogger.com/profile/10108073032107709276noreply@blogger.comtag:blogger.com,1999:blog-5398956932575790.post-9041783849114187112010-01-26T06:17:26.303-08:002010-01-26T06:17:26.303-08:00Nick, thanks for making me laugh this morning AND ...Nick, thanks for making me laugh this morning AND for keeping your wry sense of humor. <br /><br />Funny on the Velcade thing, we were told we could skip it if we were on vacation or some other thing and couldn't get it adjusted. Of course, Dave works to reschedule it if he needs to and we haven't had to skip it. I'll be very interested to hear what you find out.<br /><br />Hugs to your better half for me.<br /><br />LoriLori Puentehttps://www.blogger.com/profile/11304096696996620733noreply@blogger.com