tag:blogger.com,1999:blog-5398956932575790.post1967736907141873748..comments2024-01-23T21:37:27.869-08:00Comments on Nick's Myeloma Blog: Gadzooks it's been a long time! Sorry folks! :)Nickhttp://www.blogger.com/profile/09733312143898687572noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-5398956932575790.post-24393112402956511282012-12-14T11:10:48.896-08:002012-12-14T11:10:48.896-08:00Hi Everyone,
Those of you in remission, can I ask ...Hi Everyone,<br />Those of you in remission, can I ask what type of MM you've been diagnosed with, ie. IgG, IgA, IgM, etc. Thanks.<br />Joanna.Joannahttps://www.blogger.com/profile/11220802671791352331noreply@blogger.comtag:blogger.com,1999:blog-5398956932575790.post-89629370482631416882012-03-25T15:40:51.263-07:002012-03-25T15:40:51.263-07:00Glad to hear you are in the Not Dead Yet club, Nic...Glad to hear you are in the Not Dead Yet club, Nick, and are looking at the goal of CR. Intending we are hearing that good news from you after your trip to ArK. It has been an amazing four years and I am still following you because I am still intending CR for the family member that got my attention about MM in the first place, also almost four years ago. Although we have lost some bright lights along the way, there are many still shining and for that I am truly grateful. Let's keep intending for the simple, non-invasive cure coming to all soon!Sandyhttps://www.blogger.com/profile/02265922352726668243noreply@blogger.comtag:blogger.com,1999:blog-5398956932575790.post-47775250097495369952012-03-14T19:32:17.939-07:002012-03-14T19:32:17.939-07:00JC -
The four-year theory that I mention refers t...JC -<br /><br />The four-year theory that I mention refers to my doctor's belief that if, after enduring his regimen, the cancer has not returned, that you are cured. Unfortunately this prognosis (which some find controversial to begin with) applies only to his regimen, which includes tandem transplants with specific multi-regimen chemo before and after transplants and three years of maintenance...that's the point of going through all that.<br /><br />However, you may have a very long remission...I know people 10 years out of a single transplant with no maintenance that are still in complete remission. I certainly wish you a very healthy and lengthy remission and hopefully a simple, non-invasive cure comes out in the meantime!Nickhttps://www.blogger.com/profile/09733312143898687572noreply@blogger.comtag:blogger.com,1999:blog-5398956932575790.post-48149023084035455692012-03-14T04:14:14.447-07:002012-03-14T04:14:14.447-07:00Nick,
Interested in your four year time line. Sinc...Nick,<br />Interested in your four year time line. Since I did my auto transplant, it will be four years in a couple of months for me with no drugs since transplant and still in sCR. Does the same theory apply for non maintenance transplant patients?<br />I don't think I could have tolerated four more years of steroids. Nine months was hard enough on me, my eyes and my sleep. Thankfully they all corrected when the steroids ended.<br />Always love reading your posts and your journey with a different approach to treatment.<br />JCJhttps://www.blogger.com/profile/00617421438985607436noreply@blogger.comtag:blogger.com,1999:blog-5398956932575790.post-41106419052531463252012-03-12T11:20:55.200-07:002012-03-12T11:20:55.200-07:00Glad to hear you've gotten to the bottom of th...Glad to hear you've gotten to the bottom of the shoulder ailment and are doing well. Just watch those meds Nick. Addictions to them can sneak up on ya. My sis worked in a re-hab years ago and getting off prescription meds is harder than getting off the street stuff. Stevie Nicks said getting off Klonapin was much tougher than kicking cocaine. Reefer may not be a bad idea, after all. ;o) Just kidding! Best wishes from Jersey!tim's wifehttps://www.blogger.com/profile/08605449376728668764noreply@blogger.comtag:blogger.com,1999:blog-5398956932575790.post-79927179222530215312012-03-10T23:15:48.530-08:002012-03-10T23:15:48.530-08:00I just found out Iam developing cataracts from the...I just found out Iam developing cataracts from the dex that I was on 10/08 to 8/11. I wonder if the side effects ever end?<br /> I am in complete remission, however the effects of treatment continue to wreak havoc with my body.<br /> Hoping your health continues to improve and you stay on touch on your blog.Kristinehttps://www.blogger.com/profile/11905374078980530612noreply@blogger.com